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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-07-2016, 05:02 AM | #11 | |||
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What was wrong with your urine sample, if I may ask? Was it the Xanax. Odd, since you've been prescribed that medication.
5 weeks is still long. Don't you have a primary care physician? I'd go with the rheumatologist, going forward, and try and find a different pain clinic. Hang in there! Knee pain is intense (I know).
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | Littlepaw (10-07-2016) |
10-07-2016, 05:49 AM | #12 | ||
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Tuna,
It was a rheumatologist who helped me by sending me for X-rays. The podiatrist I was seeing at the same time "thought" I had RSD, but decided to "wait" a few weeks before sending me for X-rays. He also said he "might" give me pain help after a few more visits. He did diagnose me based on those X-rays, but I never wanted to see him again, because IMO he allowed me to suffer. If a doctor thinks you have RSD there should be immediate action IMO. Doctors know the RSD pain is off the charts. Call the pain clinic and tell them what the rheumatologist said. They may try to see you sooner or send you to another doctor or send you to Aqua PT. Call around to see if there is a heated pool you can get into NOW. Please do not use ice as Catra advised and also as she advised bathe in Epsom salts. I found the latter hard to do. I loved it, but getting in and out of the tub multiple times a day was way beyond my pain threshold and energy level. But go for it, if you can. epsom salt | r.s.d.ecoding If you have swelling, Natural Remedy to Reduce Swelling - YouTube Using a specific washing crystal you can wick off excess fluid. I found this very helpful. http://www.carriagehousemedicine.com/knee_pack.pdf It does not help the pain, but it is my belief that removing the stagnant excess fluid allows the lymph system to get back in action to do its job, which will help heal the limb and prevent long term, irreversible damage to the skin, etc. Please look up DMSO. DMSO Gel 1g [DM2] - $24.99 : PreventDisease.comThis helped somewhat, as did serrapeptase, but not enough to make the RSD pain bearable.PARC: Promoting Awareness of RSD and CRPS in Canada DMSO and Epsom salts/magnesium can be purchased cheaply through farm supply stores, if there is one near you. Magnesium oil is great to have on hand. Wonderful for aches, restless legs and CRPS. https://attackofthecraps.wordpress.c...ow-i-love-you/ Medical marijuana is supposed to be helpful for pain. Also MJ oil. I have not tried either.Illinois Cannabis and CRPS 14 Ways to Relieve Chronic Pain | Lifescript.com Avoid braces and anything constricting. Please update us. Last edited by BioBased; 10-07-2016 at 10:33 AM. |
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10-07-2016, 01:11 PM | #13 | |||
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Hi Tunajon,
I am sorry to hear about your disappointing appointment with pain management. I am confused as to how you "failed" the drug screen if you have a legitimate prescription for xanax. I don't know that Pm doctors are typically managing their patients psychiatric meds. You'd think that they have patients with medications like xanax on board and being prescribed by other doctors. It seems strange to me that this prevented a consult. I DO understand that they need to know about any and all prescriptions to avoid potential for addiction and to manage unsafe interactions. I also understand why they want you to wean off the xanax. Unintentional overdose and respiratory failure risks are higher in patients who take both opiates and benzodiazapenes. I'm not clear on why you couldn't be seen to discuss neurontin or other non-opiate options or the possibility of local or sympathetic blocks if you wanted those. From here, that seems a little odd. Also what are you supposed to do about your anxiety Do they have therapists or prescribe anti-depressants? kinda strange... I hope you are able to get what you need soon. If this clinic is not a good fit it may be worth trying another. I "interviewed" 3 PM doctor candidates before finally hiring one. The first two didn't make the cut. You should be able to ask about the clinic's policy for anxiety meds from other prescribers before committing time and resources to an appointment. Also, does the rheum's consult mean that your patella is right where it should be or is it still off? May tomorrow be a better day,
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Littlepaw Shine Your Bright Light |
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10-08-2016, 03:04 PM | #14 | ||
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Quote:
Its possible to purchase various brands of temporary hand controls which can be easily moved between cars and are handy for e.g. using in rental vehicles but they are much more difficult and less instinctive to use, especially when you are new to these things so I really very strongly wouldn't recommend these for you. |
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10-09-2016, 12:21 PM | #15 | ||
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I am sorry for your struggles with diagnosis and finding the right doctors. Don't despair! Many of us have gone through this mess, but have found doctors and treatments that have improved our lives. Keep doing your research and be your own advocate. Wishing you strength and peace. Shay |
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