Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-11-2016, 11:50 AM #1
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The LDN Story (A documentary about low dose naltrexone) - YouTube

Barb, US - Reflex Sympathetic Dystrophy (RSD) - Low Dose Naltrexone (LDN) - YouTube
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Old 10-11-2016, 01:55 PM #2
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Ooh, thanks!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 10-11-2016, 03:49 PM #3
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Old 10-19-2016, 08:10 AM #4
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Default LDN - just starting

Quote:
Originally Posted by tatagraves View Post
I want to start taking low dose naltrexone for my crps. I am pretty nervous and have a few questions before I start it. My first question is did it make anyone worse? I am trying to take back my life and am very nervous about anything getting worse then it already is. My second question is how did you guys get it? Did you get through your doctor or online? Prescription or no prescription? I believe i have read you have to get it compounded and I know some labs are better than others. So if anyone just has any recommendations on how to acquire this and if I should even bother then I'd be very thankful.
I will let you know just started six days ago at 1.5 mg at night before bed - fast release, filler is Avicel. It was compounded for me. I had to educate my GP doctor in a nice way after trying a pain clinic which would only offer gabapentin. I did the research and brought her articles from reputable sources. I will start 2.0 mg this Sunday for 10 days and work my way up to 3.0 mg in 0.5 mg additions. So far no bad side effects. I think my mood has started to improve but that may be because someone is starting to work with me. This drug takes time to work and I need to be patient.
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