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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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I mean, I know it's "new" and all, but... really? It's a pain medicine, right, not something that improves the CRPS. And there are plenty of other options in that regard. And everyone is different! I've been on Neurontin and buprenorphine patches + sublingual buprenorpine since 2004. These things have tackled my pain tremendously well. I do have my moments where the pain breaks through, but the sublingual pills take care of that pretty darn well. I do have a remnant of pain, but nerve pain is difficult to truly get rid of. Nothing can be done for my legs anymore, but I knew that. It was far too late for any kind of treatment (not that doctors didn't try and give it their all, because they *did*, you betcha). My arms, different story. That was early stage and was tackled with calcitonin pretty well (I react favorably to that medication). Anyway, what I want to come across is that it is DIFFERENT for everyone, and it's like LDN is just being pushed forward as "the answer", and I don't like that - at all. Just wanted to get that off my chest.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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