Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-19-2016, 09:16 AM #17
gailr gailr is offline
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Join Date: Oct 2016
Posts: 8
5 yr Member
gailr gailr is offline
Junior Member
 
Join Date: Oct 2016
Posts: 8
5 yr Member
Default LDN Help

Quote:
Originally Posted by Littlepaw View Post
Hi Tata, I hope what you need isn't getting buried in here too badly. We seem to be getting a little off-topic.


CRPSbe,

Tata specifically asked about LDN as a possible treatment. We are supporting her by sharing what we know. I don't know why this offends If posts on this topic really bother you maybe it would be better to ignore them.

Yes, Bio raves about LDN. And why not? It has helped her tremendously and is a non-invasive, inexpensive, non-addicting, low side effect profile treatment with research behind its efficacy. I'm glad there is something positive for Tata to hear about it. I wish we had more treatments like this to hooray about.

We do talk a lot about different options. However, we have our own bias because if something is working for us it is often the result of a lot of trial and error. We are limited by being able to share what we know personally and what research we've encountered. Naturally the same things are going to come up again and again.

As for CRPS being "very" disabling. There is that possibility for sure, but the statistics support improvement in the majority of cases. I fully agree it is a difficult disease but I hope sharing our knowledge with each other helps us all achieve the best possible outcome.

Hugs to Tata and thanks (we get a little carried away sometimes)
I like you very much as you are very common sense. I am hoping Tata got my response to her as I am just starting LDN last thursday and am new to the group. I started at 1.5 mg and am hoping to move up 0.5 mg every 10 days. My GP got on board and it is being compounded locally with Avicel filler (filler is important for fast release). No bad side effects yet. I also started compounded DMSO 50 percent with rose oil for scent (it can be smelly) on my hand 1/2 teaspoon up to 5 times a day). My hand is less stiff and painful for a small amount of time when used. It will give a faint taste of garlic in mouth. If used don't rub in let it absorb into blood stream for at least 20 min and wipe off excess. This is what I am doing so far in my journey aside from PT and constant movement and just started mental health therapy.
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"Thanks for this!" says:
BioBased (10-19-2016), Littlepaw (10-19-2016), PurpleFoot721 (10-19-2016), Shay08 (10-21-2016), shelbie4u (10-22-2016)
 

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