Hi Everyone.

Say, is there anyone out there that has tried ketamine treatments? Not sure if we've talked about this before or not.

I'm told that I could possibly do a ketamine infusion treatment that would be a daily IV treatment for 3 weeks down at Mayo Clinic. I believe this will keep me from working - I'd need to take 3 weeks of short term disability.

Is there anyone out there that has done this type of treatment?

Hey,

I haven't done this treatment - but GnP has.

However I have been on daily oral ketamine for over a year and it has really helped my pain and has allowed me to go to uni so it's great YAYAYAYAY so I would really REALLY advise it!

Love

Frogga xxxxxx

Hello,

I have had repeated Ketamine Infusions but never as an outpatient so I am sorry but I can't comment on the outcome. Hopefully someone who had done it this way will be able to advise.
Tayla

there's so much discussion about IV Ketamine--would be good to hear more..

Frogga... more please about ORAL Ketamine... how prescribed, dosage, etc.

I'd heard about this from mom whose daughter had horrendous pain following surgerys for Chiari --she said it was the only thing that helped
( her daughter also had intensive sedation in-hospital + narcotics, etc...)

Good to hear Something helps this pain!!!

Hi.

Yes, Frogga, I would like to hear more about the oral ketamine. What are the side effects?

thank you.

Sorry I have not had consecutive ketamine IV boosters .
I have only had one booster followed by an oral protocol.
Dr.Schwartzman does offer a 10 day outpatient protocol
IV boosters - 4 hrs @ 20 mg /hr for 10 days

He did tell me that these are not as effective as the wide awake coma treatments as RSD is stubborn .The brain likes it's new rewired system and does not want to go back to its old way of functioning .
As soon as the ketamine is out of our bodies the brain goes back to misfiring That is why it needs to be rewired around the clock. and it needs a lot and sometimes repeatedly and often.
At least that is his theory.It does make sense.
Ketamine is an Nmda antagonist- that is why it works so well
If you trust your doctor and want to try this outpatient protocol why not?
There are abstracts on the topic so why don't you google it to become more informed,
I am sure any good amounts of ketamine will give you some relief and if you are lucky it will last awhile.
What would be wrong with that?

peace.

GnP

Frogga and others who have tried ketamine.....
Just wondering how you are taking the ketamine. I tried both the nasal and tongue route and neither helped at all. What are you using? Just curious. Maybe there is a pill or something. After having a really bad neuropathic reaction in my mouth to a liquid med. I am scared to death to take anything on my tongue again.
Thanks,
Sydney

Hi

I have it liquid.. 25mg qds. I can take slightly more in flare ups. I had nausea, headaches, chills etc when I started it and if I miss a dose I feel horrendous. I find it helps the sensitivity (can now bear socks and people touching my legs and arms which previously had me in hysterics it still hurts but only 8/9 out of 10... I went onto it from 125mg fentanyl (diuladid?) and up to 270mg morphine and break through meds. (though still need other stuff). It's not a cure and I am still severly disabled BUT it has given me the chance to get up, have several hours where I can concentrate enough to work and for me, from crying 20 hours a day, it is a 100% step forward.

Love

Frogga xxxxx

Which Mayo Clinic do you refer to ? Scottsdale, AZ or Minnesota? I didn't know they did it there. Has anyone here had contact with a Dr. Harbut? He seems very skilled at doing the ketamine low dose infusion with very good results.

I have just been researching Harbut. He made a recent move from Little Rock and is at a new place, but needs to obtain funding to restart the Ketamine the way that he does it. He currently is not taking any patients. However, they seem to have some set-up with RSDHOPE.org that they will report when he is back to doing the treatment
Lori Lee