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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-22-2007, 07:30 PM #21
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Hi Allen,
Sorry to hear that you are having such a tough time. I know about the breathing and having to get your feet up. I want to spend more time on the computer and physically can't. I think alot of us can sympathize with you there. It was a physical therapist that caused the spread for me. I'm in CA and was encouraged to sue. The attorney dropped the case at the last minute and is now suing me for outrageous expenses.
I hope this new doc can do something that gives you some relief.
Linmarie
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Old 07-22-2007, 07:43 PM #22
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Dear Frogga -

Yes. Zometa is a pamidromate. My apologies for putting in the wrong article in the first post: I confused zoledronic acid [Zometa] with Zicontide [Prialt]. (I guess there are many reasons why I'm not allowed to write script.)

Anyhow, I corrected the last post and attached a couple of articles to it. Check them out when you can.

Mike
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Old 07-22-2007, 08:07 PM #23
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Thanks Mike! That's great!! I guessed it was, did it help you after the first infusion? or did you need more?

Love ya

Froggsy xxxxxxxx
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Old 07-23-2007, 02:54 AM #24
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F -

It took three infusions, each a month apart, before it really "took." Since then, I get "boosters" every 4 to 6 months.

M
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