Hi all!

Man RSD has to be the worst thing on the planet. The pain is like the energizer bunny lol. The darn stuff has spread throughout my body now, and sometimes it is very difficult to even move let alone walk.

I have to force myself to get up in the morning, and once up can hardly get around. Sometimes the pain is so bad I forget to breath, im just sitting there all clenched up and holding my breath.

I had a friend recently send me an email. It really hit me hard because I knew that RSD has effected me, but didnt realize that others were noticing it so much. I posted it up on my forum, and would have posted it here, but I gotta get my feet up. They are so swollen they feel like a macy's day parade balloon. lol

Here is the link to my friends point of view on RSD.

http://www.freepowerboards.com/crps/crps-about66.html

Hi Allen, Sorry you're having such a tough time of it right now. Hope something....anything...comes along to lighten your load. I read your friends letter and it brought tears to my eyes. What a dear friend you have and how eloquently he described your struggles with this disorder. I think as RSD victims we often don't recognize what this disease has done to our minds and our bodies. The deterioration that we experience comes on so gradually that we seem to incorporate it into our everyday life and don't notice it's impact on us the way our friends and family do. That letter was a real eye opener for me. It made me stop and take a look at myself and what this disease has done to me. I must say it was not a pleasant revelation but a much needed one. Thank you for this post and I'll be hoping for better days for you...Jeannie

sorry you are feeling this way i hope you are able to have better days soon. i pray that you and the rest of us will one day find a solution to end this crappy disease. until then i hope you can stay strong and know that you are not alone. wishing you nothing but peace and pain free moments, jen

you got to see your rsd through someone elses eyes, and it is an eye opener for all of us. i often think i 'hide' my rsd well, but after reading your letter i see it more clearly. thank you for sharing.
i am sorry you are flaring all over and hope it calms down soon.
joan

thanks to you, Allen & your friend .... for this Letter shared

what a Blessing to have a friend who is so caring

may more Blessings Come & be w/ you & all suffering... esp. Relief

That was such a beautiful letter. It's so good to have friends like that to walk through this time of your life with you as well as the good times and know what you are going through.

I have thought of you, Mark, and Vicc lately. I was wondering how all of the guys were doing. I know though when someone usually disappears on here it is due to more pain or getting better. Most of the time more pain.

I hope you start seeing some better days and are able to hang around here with friends even if you can't get out with your other friends.

Ada

Hey there Allen! I too want to say I feel so bad that your RSD has kicked in so bad! I will keep you in my thoughts and prayers for sure. Thank you so much for your friends letter! wow.. what a eye opener to what we all have here.. plain "Pain, depression"! thanks again. you are missed here Allen! ((((hugs Allen)) Love, Desi :0)