Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 11-06-2016, 06:43 AM #1
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Not a grandparent...but I have a soon to be 2 year old daughter. I can tell you...it's TOUGH. Everything you said is pretty much correct...I get bumped all the time, stepped on, trip over toys, sometimes when she sits in my lap for reading time she will kick her feet and send me into a flare up, etc. It's easy for other people to say things like, "Be careful" or "Tell them to be gentle"...but kids are kids...they don't understand...and most of the time she hurts me by doing things that are meant to show me love. And that just is what it is. I'm not willing to give up any of those moments with her...so I'm almost always dealing with increased pain because of one thing or another. It's been even harder since I fell off a ladder at work a year ago because now my shoulder/arm are a mess as well.

BUT...if I wasn't her mom...there are definitely things I could do to spend time with her that would not be as likely to cause flare ups. As it is...there are definitely activities that are mommy activities because they are easier on me. One is feedings...when she's in the high chair I feed her all her meals at home. That's actually gotten harder since I hurt my shoulder...but as long as she's on my right side and I can use mostly that arm to feed her...she doesn't hurt me doing that. In the high chair we can also do things like color together. I read her books while she eats her meals...that is always fun.

When she was really little...we had a play yard fence that we kept up all the time so that I didn't have to worry about chasing after her because that wasn't going to happen. At my MIL's house...we sometimes put the baby fence around me to protect me from wild and crazy kids...prevent the bumping and such while still letting me be around everyone.

Those are just a few things that we do. When that day comes...you can definitely find some ways to handle those first few years while minimizing the issues like bumping and flare ups. It won't be what you would have envisioned pre-CRPS...but it will still be time spent with loved ones. The hardest part actually won't be the kids...it will be talking with your OWN kids...their parents...about what you NEED from them to make these visits as easy as possible for you. That's always the hardest for me anyway...because I am not good at asking for help...but you've got to do it if you want to be able to spend time with littles but have the issues that we have. Let me know if you have any other questions about anything I did with my daughter to make life a little easier. As the years go by I am sure I will be adding to that list.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (06-30-2018), Shay08 (11-08-2016)
Reply

Tags
crps, degree, hug, love, pain


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I think she has CRPS lakens mom Reflex Sympathetic Dystrophy (RSD and CRPS) 10 10-19-2013 10:45 PM
Is this CRPS? ellery Reflex Sympathetic Dystrophy (RSD and CRPS) 5 08-20-2013 09:49 PM
crps walkbyfaith New Member Introductions 2 02-17-2011 01:30 AM
crps katric511 Reflex Sympathetic Dystrophy (RSD and CRPS) 4 02-15-2011 08:56 PM
Crps! Courtw84 New Member Introductions 9 02-10-2010 12:48 AM


All times are GMT -5. The time now is 01:34 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.