Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-27-2017, 12:38 PM #11
gsimmons03 gsimmons03 is offline
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gsimmons03 gsimmons03 is offline
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Default gabapentin for burning pain

I'm going to chime in here on burning pain and gabapentin. I'm willing to try almost anything to lessen the burning (which was so severe at times that I was taking Vicodin).

I was taking as much as 3,300 mg./day (1,100 three times/day). Then I saw an article posted in a pain journal about good results with turmeric curcumin, and even its ability to regenerate nerves. I spoke with my neurologist about it, and he gave me the go-ahead. I started taking 500 mg. of turmeric curcumin 3x/day and have been able to reduce my gabapentin to 600 mg. three times per day. The turmeric curcumin really does reduce the burning pain.

Now my neurologist has recommended electronic signal treatment (also called combined electrochemical therapy, or CET). It's not covered by Medicare or most insurance, but I'm going to go ahead and give it a try. I've seen some studies saying that there's nerve regrowth in about 80% of patients.
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Old 01-27-2017, 02:12 PM #12
Brightcloud Brightcloud is offline
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Would appreciate knowing what brand, number of milligrams, and other details about the type of turmeric-curcumin that you are taking. I'm glad that it is helping you.
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Old 01-31-2017, 08:17 AM #13
lili85 lili85 is offline
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Default Pleaser forgive me. I'M NEW BUT...

I've just been diagnosed with RSD after breaking my foot, but I was in a car accident which lead to surgery, bone harvesting, bone grafting and instrumentation into my lower back. I Iearned one thing. If something hurts, DON'T STICK A NEEDLE IN IT. I used a patch. Of course it worked! The atmosphere regarding schedule two (ll) narcotics is repugnant. With the DEA involved, its just like having the government prescribing medication for our bodies. I'm tired of the stigma. Until you do something that shows your doctor you cannot be trusted, he/she should prescribe WHATEVER he can until something works for you (within reason). Research says that nerve blocks ARE NOT more effective than pain medicine. The effects are temporary if they work at all ( just like any other therapy, drug, PT etc...). I was told: Only nerve blocks work. That's not true. I changed doctors. I wanted what works for me. More Methadone! BUT I don't have a doctor who knows me anymore. I was not happy being prescribed Lyrica...UNTIL IT WORKED. I don't want to jinx it...but...no more burning! Different things work for different people. Turmeric curcumin? I shall now look that up. (sorry I don't mean to impose my beliefs or values on another, but you do have the right to say "NO"! & actually i was looking to post a question of my own and didn't know where to post it. I couldn't help but see your post. I'll try to be short & sweet next time).
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