Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-20-2007, 07:30 PM #2
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RSD_Angel RSD_Angel is offline
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Join Date: Oct 2006
Location: Greene, NY
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RSD_Angel RSD_Angel is offline
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Join Date: Oct 2006
Location: Greene, NY
Posts: 153
15 yr Member
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Hey there!!

Im soo happy to hear that your stim works.. I have 2.. yes 2 and neither one works to my foot and ankle where my RSD is...

I totaly know where you are right now!! I did something similar and i did the same and turned it on again and it was down the wrong leg... well i dint want to call my doc up and drive almost 2 hours to say taht it was sometihng stupid.. so i turned it on and went to bed with it still on adn when i got up in the am... it was all "reset" it was going down the right leg and not the other. I think i got a muscle spasm trying not to twist too much but enough to clean up.. and got myself thinkin i got it screwed up that i was all tight all day.. I would just go to bed with it and see what it is like in the morning... then.. if its still not right.. to give your doc a call.

Just to reasure you .. you will be able to wipe your patootee once you get your permant one... they just tell you not to while you ahve the trial and the first couple weeks of the perm bc it has to scar down to the spinal canal areas .. after about a month you can twist and bend and everythng.. i mean you cant do gymnastics or stuff like that.. but almost be back to "normal"

Both my SCS and my PNS (peripheral stim) worked for 6 mos and then capotted..but my point is that even when they were working.. i was taking my pain pills to bc i did have break through pain in the beging and then i was off them for a couple mos ...but then had to go back on them, even havnig the revision surgeries for my SCS...

I hope i have helped ya.. and hope you a better day tomarrow!!

Amber
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