Ok.. i have been tentivaly diagnosed with either Lupus or Rheumatoid Arthritis... dont konw which is worse but both are when added to RSD>..

I am in the medical profession and know all the whats about both dz's but dont konw what to think about them on top of RSD... I am reading stuff on the internet and just thinking... god..why me... why now... im only 29!! And this year is a hard one bc in sept.. it will mark the 5 th year of having RSD.

Does anyone else have anyother auto immune dz's on top of RSD..?? I also have hypothyroidism but i had that b4 RSD...

or any wise words would be appreciated... its gonna be a long weekend.. no one is here till sunday nite except the dog and she is a good listener..lol.. but i wont konw anything about which diagnosis till monday and i think thats whats gonna make it a long weekend.. all the what if's and all..

Thanks guys.. i have missed ya all!!


Amber

Awwwwwwww.. Amber, I am so very sorry that your only 29 and have this stupid RSD on top of other things! I just want to say, you are one pretty lady. You look like a nurse, Amber! hang in there sweet one and take it easy! Love and prayers to you Amber! Love, Desi

Thanks Desi!!

I really needed to hear that right now!! And you also look too young to have this too!! and i look like a nurse huh..lol.



Amber

Hi Amber..
I was thought to have lupus 2 christmases ago but further testing showed my ANA back down to acceptable levels leaving them to believe it was a false positive test result, lately I have noticed the same type of large frekles that my sister has (she's got lupus) on her face and they seem to wrap under each cheek like where blush would go under the cheek bone.. Looks like "butterfly rash". which is a comon sign in lupus.. I am going to try a face mask peel to take it off but I realy have gotten no sun this summer.... and I do not freckle.

I have been diagnosed with fibro and CPS and generalized CRPS.
a little over two years ago I was a normal healthy 42 year old.
I will check with my doc next week about the face.. it's like the skin on it is thickening.. Right now it's a hmm thing and nothing will suprise me.. my RSD involves my organs and so does lupus.. hm

hugs,
Sandra

Sorry to hear that you are going through so much at such a young age. I got sick at 37 and that seemed to young to me but today I see more and more younger people going through so much.

Like you, I am anxiously waiting for test results. I won't know until Tuesday what my test showed. My Immunologist ran some blood test on me and the hospital had to look them up to even order them. When Keith took my blood he looked at me funny and said he sure is running some unusual test on you. I have been waiting for 2 weeks to hear. I've been too sick otherwise to worry to much about them until your post reminded me of them. Thank you for that. LOL

I have been diagnosed with M. S. I was given paperwork to grow marijuana to smoke for the pain but I did honestly try it and didn't see that it helped me a bit.

My neighbor out at my other place has MS and we always have the exact same kind of days with pain and not being able to get around. We both use canes on our worst day.

I have been diagnosed with too many other problems to even list but we take them one at a time and as each one starts acting up. Hopefully you will be able to do that as time goes on and you get each thing under control. IT takes time.

Hang in there and try to think about pleasant things for the weekend to keep your mind off of the test.

Ada

I have done a fair bit of research and I think that RSD is alot more systematic than is thought, I think it is an inflamitory disease process just as is lupus and rhumatoid arthritus, and one of the sympathetic systems functions is imune up and down regulation.. Lupus and RA are both tested (and I presume these are the tests you are waiting for) by looking for antibody levels.. RA is high lupus is higher.. RSD can cause the levels to fluxuate causing false positive results so ask to be retested after 3 weeks.

Ada, You got paperwork to grow marijuana!?? wow! I have heard of peope having papers to smoke marijuana with blindness, going blind, legally blind. this a new one on me! I wonder if Ohio allows this?? hmmm.. You said that you tried it?? once?? I tried it once while in Catholic school.. yes, Catholic school friends gave me a few puffs.. nothing! Then tried it with an old crazy ex. and the second time I was feelin' good.. took every single ache pain away with my back(I also have an "S" spinal curve.) All of my siblings had this. My baby sis. who passed away at a young age had it the worst. she had to wear a brace. she wore it for a week, took it off and never wore it again! Ada, isn't marjuana more harmful for the lungs than cigarettes? I quit smoking almost 3 yrs. ago and was just curious?? Thanks in advance, Ada! Love, Desi :0)

I don't know if other states have this but in Colorado you are allowed to raise up to I think 3 plants at a time for illnesses such as MS pain and other problems it will help.

There are only a few Drs. here also that are allowed to give you the application to raise it. I had to send the paper to Denver along with a sum of money, can't remember how much and they will send you a paper that you can show the police if they come to your house and find it.

The funny part is the federal gov. says no to this. If the feds walked into my house and found it, I would have been breaking the law. Go figure. I got the paperwork done but I chose not to raise it due to the legal problems. When I told people I could use it for the MS they started crawling out of the woodwork handing me some. It didn't seem to do a thing for my pain or sleeping. I would sleep a couple of hours and wake up and I do that anyway. If I have to smoke it every few hours to get the help then I thought why?

My PCP says it is more harmful for the lungs. That's why he threw a fit when he found out I had smoked it. I only tried it a few times though. I don't have an addictive nature so I knew that wouldn't be a problem. I was just raised to not do things like drugs so that's what keeps me from continuing it. I have never smoked in my life but some Drs. think I am lying about that when I tell them. Daddy always told us no smoking and no drinking or he'd beat us to death. LOL

I am having breathing problems now and I start that Cpep machine soon to help me at night but I am having problems in the daytime also. I am thinking it's due to the altitude here. We are at over 6000 feet so I believe the altitude is causing my breathing problems now.

I was also told that I have been exposed to chemicals. I don't know where that one comes from either so that might be contributing to my breathing problems also and the
VNS implant is also causing my breathing problems.

I don't suggest the marijuana to anyone Desi. Some people swear by it but I just don't think it's the answer.

Ada