Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-30-2016, 03:17 PM #11
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My daughter really liked UGG style boots when her CRPS foot would get ice cold. She wore them exclusively to school for a while. We also purchased her a heated mattress pad, which she really liked.
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Sophie0513 (11-30-2016)

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Old 11-30-2016, 07:28 PM #12
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Originally Posted by CRPSbe View Post
I had all those issues when my pain wasn't under control yet. Once you get some "grasp" on that nerve pain, a lot of those issues just melt away. Trust me on that. It is worthwile to check with your doctor on what medications you need to take and what dosages.

I can't begin to describe what it was like without Neurontin (gabapentin), but that medication basically saved me, and continues to save me day in day out!!! It is a true miracle!!!

Sometimes, I mean it's all put away in pill boxes for the start of the week, but on the very few occasions I miss a dosage of Neurotin... wwwoooooh boy! It's like turning the clock back more than 20 years, when I first struggled with this. On those few occasions I get transported back to THEN and... gosh gosh gosh, how I don't want to be there anymore.

Painwise at least... (sensitivity, sensitivity to touch, vibrations, the ice / frostbite in both of the legs fully etc... basically: nerve pain).

I feel your pain! I mean it! But something has to be done about it!
Marleen thank you...I am having a really bad time right now...my feet are on fire again.,it is horrible at the moment .,I see my doctor on Monday so hopefully he can help. I know I can't do this for this for the rest of my life. Your words meant a lot to me..thanks again
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Old 12-01-2016, 06:38 AM #13
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Quote:
Originally Posted by Sophie0513 View Post
Marleen thank you...I am having a really bad time right now...my feet are on fire again.,it is horrible at the moment .,I see my doctor on Monday so hopefully he can help. I know I can't do this for this for the rest of my life. Your words meant a lot to me..thanks again
Good interaction with your doctor is key. You need to talk about what kind of pain and symptoms you're feeling and hopefully your doctor will listen to you and do something about it that is *effective* for you. And if it's a medication that you can't deal with, then go back, so he can look for another solution (hopefully).

Keep us posted!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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