Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-10-2016, 07:49 AM #5
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catra121 catra121 is offline
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catra121 catra121 is offline
Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
15 yr Member
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I think this is a great idea! When things got really bad a few years ago and I had SO many symptoms and problems...I had to keep a daily journal and that really helped me to identify triggers based on what activities I did, what I ate, etc. An app that could help keep track of pain levels and activities would be amazing. I also did at home PT and had daily exercises to do...so I made a good old fashioned chart where I could check off the exercises I did each day as I completed them (I could only do one at a time with at least 30 minutes to an hour of rest between)...so it was a good way to make sure I completed the list each day or if I wasn't able to, because of the pain, it was a good way to know I had accomplished SOMETHING and what I could handle. I don't know what all would be included on that app...or if there would be a way to imput personal goals or exercises/activities that could be marked off as completed...but that would have been very helpful to me. I know I felt like every check mark on my chart was a little win to celebrate and it kept me feeling like I was accomplishing something even when the improvements were very small from day to day.
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newyorkmets (12-18-2016), RSD ME (01-19-2017)
 

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