Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-18-2016, 06:29 AM #1
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Originally Posted by Becca71 View Post
The neridronate really shows promise in the research so far as being the first drug directly for CRPS. Which is very exciting as so far everything we use is off label and for other diseases etc. Once we have our own treatment we gain recognition and research funding.
I got IVs with bisphosponates for RSD many years ago. 5 in a row, and normally they give you 1 a week, but it is that far gone and that serious in me. I think I got pamidronate at the time. I... think. It needed to run for 4H, very slowly or otherwise you get flu-like symptoms. I needed to be hospitalized for it, for a week.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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