Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 12-14-2016, 09:08 PM #1
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default Clinical trials

Hello All,

Just a friendly reminder that it's worth checking for new clinical trials every so often.

I took a peek at Home - ClinicalTrials.gov yesterday, typed in CRPS and several new studies are actively recruiting or about to start recruiting. Some of them were a few pages into the results. Trying to isolate by "actively recruiting" knocked out the ones getting ready to start and added some random stuff. I found it best just to scan through everything.

There is a "safety of neridronate" study starting soon, that means no placebo! A Stem cell study is underway in Montana of all places, Stanford is still recruiting for LDN and there is a study recruiting for AXS-02 (oral zolendronate).

Cool stuff for those eligible and interested.
__________________
Littlepaw

Shine Your Bright Light
Littlepaw is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (12-15-2016), CRPSbe (12-15-2016), RSD ME (12-15-2016), Sophie0513 (12-19-2016)

advertisement
Old 12-15-2016, 09:25 AM #2
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Thank you for sharing this info.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (12-16-2016), RSD ME (12-15-2016), Sophie0513 (12-19-2016)
Old 12-17-2016, 11:07 PM #3
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

The neridronate really shows promise in the research so far as being the first drug directly for CRPS. Which is very exciting as so far everything we use is off label and for other diseases etc. Once we have our own treatment we gain recognition and research funding.
Becca71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sophie0513 (12-19-2016)
Old 12-18-2016, 06:29 AM #4
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by Becca71 View Post
The neridronate really shows promise in the research so far as being the first drug directly for CRPS. Which is very exciting as so far everything we use is off label and for other diseases etc. Once we have our own treatment we gain recognition and research funding.
I got IVs with bisphosponates for RSD many years ago. 5 in a row, and normally they give you 1 a week, but it is that far gone and that serious in me. I think I got pamidronate at the time. I... think. It needed to run for 4H, very slowly or otherwise you get flu-like symptoms. I needed to be hospitalized for it, for a week.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sophie0513 (12-19-2016)
Reply

Tags
actively, recruiting, start, study, trials


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Clinical Trials beatle Peripheral Neuropathy 15 09-05-2015 05:24 PM
Clinical Trials Diego24 Parkinson's Disease 7 07-02-2012 09:47 AM
On Clinical Trials cyclelops Peripheral Neuropathy 4 11-12-2010 06:40 AM
Clinical Trials Stitcher Parkinson's Disease 4 02-16-2010 09:24 AM
Clinical Trials HubbyWithRSD Reflex Sympathetic Dystrophy (RSD and CRPS) 0 01-09-2007 09:38 AM


All times are GMT -5. The time now is 06:56 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.