[Littlepaw]

Hello All,

Just a friendly reminder that it's worth checking for new clinical trials every so often.

I took a peek at Home - ClinicalTrials.gov yesterday, typed in CRPS and several new studies are actively recruiting or about to start recruiting. Some of them were a few pages into the results. Trying to isolate by "actively recruiting" knocked out the ones getting ready to start and added some random stuff. I found it best just to scan through everything.

There is a "safety of neridronate" study starting soon, that means no placebo! A Stem cell study is underway in Montana of all places, Stanford is still recruiting for LDN and there is a study recruiting for AXS-02 (oral zolendronate).

Cool stuff for those eligible and interested.

[catra121]

Thank you for sharing this info.

[Becca71]

The neridronate really shows promise in the research so far as being the first drug directly for CRPS. Which is very exciting as so far everything we use is off label and for other diseases etc. Once we have our own treatment we gain recognition and research funding.

[CRPSbe]

Originally Posted by Becca71

The neridronate really shows promise in the research so far as being the first drug directly for CRPS. Which is very exciting as so far everything we use is off label and for other diseases etc. Once we have our own treatment we gain recognition and research funding.

I got IVs with bisphosponates for RSD many years ago. 5 in a row, and normally they give you 1 a week, but it is that far gone and that serious in me. I think I got pamidronate at the time. I... think. It needed to run for 4H, very slowly or otherwise you get flu-like symptoms. I needed to be hospitalized for it, for a week.