NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Need Prayers (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/24409-prayers.html)

Started the journal yesterday. Will do everything outlined in this thread, all great ideas!

It is soooo nice to have so many friends backing me up, I feel mucho better. Like im not going through this thing alone. It is a surreal feeling after being denied so many times.

I do have one thing in my favor acording to the attorney. The judge that denied me last time has retired, so we get a new judge. Hope this helps anyways lol. I will keep everyone posted on how this plays out. ;)

Love all of ya more than you know :grouphug:

Praying that "THIS WILL BE THE ONE Allen!" Yes, please post and let all of us know how go's! Love and((Hugs, Allen) Love ya! Desi

I followed everyones advice to a T, but the doctor decided she could fix me :rolleyes:

Every new doctor just has to try to fix us lol. She wouldnt do anything for SSI, but is doing some bloodwork, xrays, and a sleep test. When she checked me over she did find that one half of me was colder than the other half, and the right leg, ankle, and foot was weak and has atrophy. Dont really understand how a sleep disorder can cause all of this, but she seems to think it can.

Mike, the attorney loved all the documented pain, even if it did come from a journal and not a doctor. He found that my medical files were not really that great as far as details, but he said it is par for the course with RSD. Just having RSD written down by a couple specialists, and a couple of doctors, including the SSI doc goes a long ways according him.

He was very assuring that everything was gonna be fine. Put me at ease, at least as much as possible when you dont know the out come :)

Only a few more days and I will be letting ya all know how the whole thing went. ;)

Thanx so much for the advice and support
:grouphug: :grouphug: :grouphug:

Allen,

Wishing you so much luck---I remember too well the stress and strain I was going through before my case was heard.
All went well for me and I am hoping that you will get the same outcome, it is just so wonderful to have that huge stress removed from your life.
Fingers crossed
Tayla:hug:

Allen a few thoughts that i found helpful inpreparing for eharings. paint a picture for the judge. you can say symptoms, but if you explain about your day, it becomes visual.

Sorry for typos, the fingers are bad today and no time to speel check...

explain about making meals may be from frozen entrees, of light sandwhich and soup, the can of soup, you need the can opener that is electric to open. have problems opening jars. That when you whipe the counter and are finished where the pain is from just that task. i use a lot of paper products to avoid dishes to wach, or drop and break... plastic cups too.
I can not lift pans, so soup is cooked in a gladware bowl in microwave a plate under it to steady and keep heat from burning.

try to do things on better days, becuase the frequent bad days are all about just managing the pain. There is not such a thing as taking two excidrine and feeling better, it is like a swarm of bees or hot wax pourd down and no way to wipe the pain off.

but use the thoughts that are yours that happen to you. for me it was getting out of bed doing a log roll to my knees and hoisting myself up, live in comfy pull on clothes, hours ubntil i get dressed, If i do. it hurts to hold my arms up to even shampoo hair,

making bed is soemthing i need help with. when I get awake ihave a sheet and comforter, just try to pull them up, no Martha stewart bedroom. A lot of time i sleepo in the recliner, on the couch or even pilllows on the floor to find somwhere to try and sleep.

unpredicatable to know when sweelign willpr the painwill falre. no longer do i shop at flea markets, family outing,, the long trips out are done, it is nice to try and see them once every few months hoping for a food day to take a train ride or eat out.
My hair is not cut styled, it is in a ponytail, shoew, even to church have to be comfy, it may be bed Isotoners if feet are swollen. or miss church., i use to be thre every week, now i am a Holiday person, hoping for good health.
9But now I work with kids visiting parents on sunday)

Just some ieas think of your day, how you accomadate, paint that pictute. wwhat home items do you use, i have fat handled eating utensils, use a lot of the pop up wipes, house never looks like it did years ago....
Just getting through the day is a prioroity, not dusting and scouring the toilet.

god luck to you
di

Der Allen..I will pray for you!! Dorrie:)

I hope it all works it for you- u really deserve it!

Deb

Hi Allen,

You have my thoughts and prayers.

Linmarie
:hug:

Jeez, guy,

What can I say? I'm hopeful and know you deserve it, but my heart's in my throat and I'm scared ******** that they are going to screw you again.

I'll celebrate with you if it goes well, and try to comfort you if the bastards get their way, but today all I can do is pray. I don't know if God is listening, but you know your friends are trying to get His attention. Stay strong, my brother...Vic

Hey!! how come Vic's "swear words" get to go through and mine don't??? LOL LOL Hey Allen, Just to let you know, I am praying that you DO get what your so entitled to!! Love and ((Hugs)) Allen! Love, Desi