Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-01-2017, 11:11 PM #1
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Default Finally I have good news to report

I was thinking it is not often that we get good news in CRPS so I wanted to share this to you all. This piece is my story for the last 39 days and what CRPS has taught (after I joined the gym). I hope it brings a smile to your face!!

Things I have learned from CRPS in 39 days (after joining a gym)

It makes me feel like doing a happy dance I hope everyone is having low pain day!
Inspiretoday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (02-04-2017), bluesfan (02-05-2017), catra121 (02-03-2017), Hotfoot53 (02-25-2017), Littlepaw (02-02-2017), PurpleFoot721 (02-05-2017), RSD ME (02-05-2017), Shay08 (02-04-2017), zinnia (02-03-2017)

advertisement
Old 02-02-2017, 05:33 PM #2
Littlepaw's Avatar
Littlepaw Littlepaw is offline
Senior Member
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Littlepaw Littlepaw is offline
Senior Member
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,537
8 yr Member
Default Go Strong Kels!

This is fantastic news! I am so happy to read about your improvements. Your success in breaking out of the CRPS box and getting some of your self and life back is inspiring. Identifying as athletic is a powerful place to be.

Exercise has so many benefits that we already know about. For CRPS, I think the strengthening, stress reduction and mood elevation are important. But the parts we tend not to think about, the nerdy, science-y parts about increases in chemical signaling at a molecular level and micro-circulation changes are incredibly good for CRPS limbs. My doctor tells me every time I see him that he wants me as active as I can be and that I will do best if I use my foot. So far he's right.

Trying new things and activities can expand what you believe your limits to be. I find sometimes new activities must be modified and sometimes they don't work out. When they don't, I come back to them another time, months later if needed, and try again. You'll keep surprising yourself with what you can do this way.

So proud of you Kelly! Keep up the great work and thanks for sharing.
__________________
Littlepaw

Shine Your Bright Light
Littlepaw is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (02-04-2017), catra121 (02-03-2017), Hotfoot53 (02-25-2017), Inspiretoday (02-25-2017), PurpleFoot721 (02-05-2017), RSD ME (02-05-2017), Shay08 (02-04-2017), zinnia (02-03-2017)
Old 02-03-2017, 05:25 PM #3
zinnia zinnia is offline
Member
 
Join Date: Nov 2015
Posts: 126
8 yr Member
zinnia zinnia is offline
Member
 
Join Date: Nov 2015
Posts: 126
8 yr Member
Default

Kelly, thank you for sharing your journey with us. It did bring a smile to my face, and it was encouraging to read your list. I have been going through a bad flare and your words helped me to see it for what it is, a flare, the pain will calm down.

This morning I asked my husband for some encouraging words, some words of truth, he has been on this journey with me and can see it more clearly. He reminded me it was a flare, and that many others have them also, and that I will get through it. He is a blessing in my life, as we all know how discouraging living with CRPS can be. I was glad that I asked for his encouraging words today.

May we all see the good that is all around us each and every day, gratitude will always be am important and necessary part of my life. When I least feel gratitude, is when I most need gratitude. The sun is shining on a cold February day, we are one day closer to spring. I am finding this winter that the cold does make the pain noticeably worse. I sit with the heating pad wrapped around my foot and it does help some. No matter what I am going through the words....This too shall pass.....are a comfort and a truth that I take to heart.
peace
zinnia
zinnia is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
catra121 (02-03-2017), Hotfoot53 (02-25-2017), Inspiretoday (02-25-2017), Littlepaw (03-06-2017), PurpleFoot721 (02-05-2017), RSD ME (02-05-2017), Shay08 (02-04-2017), visioniosiv (04-21-2017)
Old 02-04-2017, 11:14 AM #4
Shay08 Shay08 is offline
Junior Member
 
Join Date: Sep 2016
Location: Northeast PA
Posts: 86
5 yr Member
Shay08 Shay08 is offline
Junior Member
 
Join Date: Sep 2016
Location: Northeast PA
Posts: 86
5 yr Member
Default

Quote:
Originally Posted by Inspiretoday View Post
I was thinking it is not often that we get good news in CRPS so I wanted to share this to you all. This piece is my story for the last 39 days and what CRPS has taught (after I joined the gym). I hope it brings a smile to your face!!

Things I have learned from CRPS in 39 days (after joining a gym)


It makes me feel like doing a happy dance I hope everyone is having low pain day!
Congratulations Inspiretoday and thanks for starting this uplifting thread. I think I will join you with my own version of a happy dance.

Quote:
Originally Posted by Littlepaw View Post
This is fantastic news! I am so happy to read about your improvements. Your success in breaking out of the CRPS box and getting some of your self and life back is inspiring. Identifying as athletic is a powerful place to be.

Exercise has so many benefits that we already know about. For CRPS, I think the strengthening, stress reduction and mood elevation are important. But the parts we tend not to think about, the nerdy, science-y parts about increases in chemical signaling at a molecular level and micro-circulation changes are incredibly good for CRPS limbs. My doctor tells me every time I see him that he wants me as active as I can be and that I will do best if I use my foot. So far he's right.

Trying new things and activities can expand what you believe your limits to be. I find sometimes new activities must be modified and sometimes they don't work out. When they don't, I come back to them another time, months later if needed, and try again. You'll keep surprising yourself with what you can do this way.

So proud of you Kelly! Keep up the great work and thanks for sharing.
Thanks Littlepaw. You always share the "science" behind what works as well as inspiring words. I love your posts.

Quote:
Originally Posted by zinnia View Post
Kelly, thank you for sharing your journey with us. It did bring a smile to my face, and it was encouraging to read your list. I have been going through a bad flare and your words helped me to see it for what it is, a flare, the pain will calm down.

This morning I asked my husband for some encouraging words, some words of truth, he has been on this journey with me and can see it more clearly. He reminded me it was a flare, and that many others have them also, and that I will get through it. He is a blessing in my life, as we all know how discouraging living with CRPS can be. I was glad that I asked for his encouraging words today.

May we all see the good that is all around us each and every day, gratitude will always be am important and necessary part of my life. When I least feel gratitude, is when I most need gratitude. The sun is shining on a cold February day, we are one day closer to spring. I am finding this winter that the cold does make the pain noticeably worse. I sit with the heating pad wrapped around my foot and it does help some. No matter what I am going through the words....This too shall pass.....are a comfort and a truth that I take to heart.
peace
zinnia
Thanks Zinnia for adding some important points to this discussion. Our significant others can often add some clarity when the pain or meds muddle our minds a bit (or a lot). For those who don't have that kind of support, please know that we are here ready to listen and encourage.

I agree that gratitude is so important. It helps keep things in perspective. Right now I am very grateful that InspireToday started this thread and you, Zinnia, and Littlepaw added such thoughtful posts.

I hope your pain is low today. I also hope that everyone has a chance to read this thread even if they don't have time to comment.

My thoughts and prayers are with you all.

Shay
Shay08 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (02-04-2017), Hotfoot53 (02-25-2017), Inspiretoday (02-25-2017), Littlepaw (03-06-2017), PurpleFoot721 (02-05-2017), RSD ME (02-05-2017)
Old 02-05-2017, 11:27 AM #5
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

I've been following your blog and loved that post. Gave me hope!
Becca71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (02-10-2017), Hotfoot53 (02-25-2017), Inspiretoday (02-25-2017), Littlepaw (03-06-2017), PurpleFoot721 (02-05-2017), RSD ME (02-05-2017), Shay08 (02-06-2017)
Old 02-05-2017, 12:39 PM #6
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Thanks for the great post Inspire! Loved it.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (02-10-2017), Hotfoot53 (02-25-2017), Inspiretoday (02-25-2017), Littlepaw (03-06-2017), PurpleFoot721 (02-05-2017), Shay08 (02-06-2017)
Old 02-25-2017, 09:17 PM #7
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Inspiretoday Inspiretoday is offline
Junior Member
 
Join Date: Dec 2014
Posts: 84
8 yr Member
Default

Hi All,

Thank you for your support! I am still feeling better but pain is starting to creep up. I hope that everyone is enjoying their weekends with low pain much metta
Inspiretoday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Hotfoot53 (02-25-2017), Littlepaw (03-06-2017), RSD ME (03-28-2017)
Old 02-25-2017, 11:06 PM #8
Hotfoot53 Hotfoot53 is offline
Junior Member
 
Join Date: Jan 2017
Location: Florida
Posts: 47
5 yr Member
Hotfoot53 Hotfoot53 is offline
Junior Member
 
Join Date: Jan 2017
Location: Florida
Posts: 47
5 yr Member
Default

Quote:
Originally Posted by Inspiretoday View Post
Hi All,

Thank you for your support! I am still feeling better but pain is starting to creep up. I hope that everyone is enjoying their weekends with low pain much metta


I'm so glad that you've been able to break out and continue to feel better even when it's not perfect (i.e. the creeping). I've been reading your blog and it resonates a strong will and healing vision. I'm happy for you, and I'm looking at things I can do to take some lessons from you. Thanks for sharing. Hotfoot53
Hotfoot53 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (03-06-2017), RSD ME (03-28-2017)
Old 03-05-2017, 08:35 PM #9
ShonnieBee ShonnieBee is offline
Newly Joined
 
Join Date: Mar 2017
Location: Portland, Oregon
Posts: 1
5 yr Member
ShonnieBee ShonnieBee is offline
Newly Joined
 
Join Date: Mar 2017
Location: Portland, Oregon
Posts: 1
5 yr Member
Default So cool!

Thanks for sharing this. I went for my first swim today in over a month and it's been a low pain day and I'm feeling damn good. Exercise is definitely a winner.

Thank you!
ShonnieBee is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (03-06-2017), RSD ME (03-28-2017), Shay08 (03-06-2017)
Old 03-06-2017, 08:22 AM #10
Shay08 Shay08 is offline
Junior Member
 
Join Date: Sep 2016
Location: Northeast PA
Posts: 86
5 yr Member
Shay08 Shay08 is offline
Junior Member
 
Join Date: Sep 2016
Location: Northeast PA
Posts: 86
5 yr Member
Default

Quote:
Originally Posted by ShonnieBee View Post
Thanks for sharing this. I went for my first swim today in over a month and it's been a low pain day and I'm feeling damn good. Exercise is definitely a winner.

Thank you!
Hi ShonnieBee and welcome to the NeuroTalk RSD/CRPS support group. Thank you for posting about your good day after swimming. Yes, exercise is definitely a winner. We just need to read our bodies and adjust our exercise routines as needed. So, if you have a bad day after exercising, don't let it get you down. It happens to people without chronic pain problems, so it will certainly happen to us. Enjoy good swims and good days.
Exercise is definitely a winner.(Words to remember)

Shay
Shay08 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Littlepaw (03-06-2017), RSD ME (03-28-2017)
Reply

Tags
crps, gym, hope, news, smile


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Good news...finally skywalker1988 Multiple Sclerosis 3 11-02-2013 11:48 AM
Good News...Finally andi Traumatic Brain Injury and Post Concussion Syndrome 2 10-25-2012 11:13 AM
Finally Good News azoyizes The Stumble Inn 13 03-13-2010 08:49 AM
Good News, Finally yeahbut The Stumble Inn 20 03-22-2008 10:52 AM
Finally some good news wannabe Multiple Sclerosis 4 04-21-2007 10:01 PM


All times are GMT -5. The time now is 06:15 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.