Hi there I am looking for any articals or sugestions for where I can find articals of organ involvement in RSD, searching for it's like it was a couple years ago looking for articals on spread I knew it was out there and searched till I found it.. But I am not having much luck yeat and I thought I would ask you guys since we are all getting so good at it for help in my research.. I am having quite a few problems and it seems I get panicy if I don't understand what and how it is effecting me.

thanks

Sandra

Neurological Associates

Pain Management Center

Vero Beach, Florida

H. Hooshmand, M. D.

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RSD PUZZLE #34
"CAN RSD INVOLVE INTERNAL ORGANS?"


RSD invariably involves the internal organs. Usually the skin surface is cold at the expense of increased circulation to the internal organs. This increased circulation can cause osteoporosis, fractures of bone, abdominal cramps and diarrhea, disturbance of absorption of foods with resultant weight loss, water retention with aggravation of premenstrual headaches and depression, persistent nausea and vomiting, as well as severe vascular headaches mistaken for "cluster headache".

In addition, the sympathetic dystrophy can cause the complication of intractable hypertension which responds best to alpha I blockers (Dibenzyline, Hytrin, or Clonodine). The RSD can cause attacks of irregular or fast heart beat, chest pain, coronary artery spasm (angina), as well as disturbance of function of other internal organs. A few examples are frequency and urgency of urination, respiratory disturbance such as dyspnea and apneic attacks, and attacks of severe abdominal pain.

Laparoscopy may reveal congestion and inflammation of the ovaries, uterus or small bowel.

Attacks of fluctuating blood pressure may also be accompanied by constriction of the blood vessels to the kidney resulting in periodic bleeding in the urine as well.

The internal organs complication may become aggravated by traumatic effect of sympathetic nerve blocks. One such complication is accidental trauma to the kidney with resultant hematuria (blood in urine) and aggravation of hypertension.

Nerve blocks and more importantly physical therapy help improve the skin circulation and reduce the deep circulation calming down the inflammatory affect of RSD over the internal organs. As mentioned above, alpha I blockers are quite affective in treatment of this condition.

Attacks of swelling of the internal organs complicated by intermittent constriction of the blood vessels to different organs can result in chest pain, attacks of sharp central pain (stabbing severe pain in the chest or abdomen), and changes in voice (suddenly developing a temporary "chipmunk" type of voice change). The sharp, stabbing, central pain can be helped with treatment with medications such as anticonvulsant (Tegretol or Neurontin).

The use of catheters adjacent to the sympathetic change such as in the lumbar sympathetic change can help prevent repeated needle infection for sympathetic nerve blocks. However, because of the congestion of the internal organs the catheter may irritate the sympathetic nerve branches causing constriction of the blood vessels to the spinal cord with temporary paraplegia. As soon as the weakness of extremities develops, the catheter should be removed. Not heeding to this ominous sign can result in paralysis of the lower extremities and incontinence.

The same congestion of internal organs can also cause hypersensitivity to smell and aversion to taste of certain foods.




H. Hooshmand, M.D.



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Copyright © 1997-2006 H. Hooshmand, M.D. No part of this publication may be reproduced, transmitted, stored in a retrieval system other than this specific media, transcribed, or translated into any language without the expressed written permission from the author; H. Hooshmand, M.D. and Eric Phillips and CMNE. This material is for informational and education purposes. It is not meant to take the place of your physician. Before starting, changing, or stopping any treatments or medicines consult your physician.


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The material on the Neurological Associates Pain Management Center Homepage and all it's associated, linked or reference pages is for informational and education purposes. It is not meant to take the place of your physician. Before starting, changing, or stopping any treatments or medicines consult your physician. H. Hooshmand, M.D., Neurological Associates Pain Management Center and Associates will not be held liable for any damage or loss as a result of information provided on this page or associated documentation. Again, this WEB SITE is simply published as an information source and should not be used to treat or make judgments on RSD/CRPS. All associated material on this web site may not be copied, reproduced or quoted without expressed written permission from the owner; Copyright © 1999-2006 H. Hooshmand, M.D.



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This page was last updated on 3/11/2000.

Wonderful thanks Ada.. puzzle 19 has some realy good information as well.. but I have found very little else and no clinical trials dealing with or reporting with it... Dr H's puzzles paint a grim picture and for some reason my doctors don't take his literature very seriously. There is also Dr Schwartz's "RSD with distant effects", I forgot about that one too.. here:

http://www.homestead.com/robertgschwartz/page5.html

I need to bring stuff in for my doctor to see.. one doc says it is in my organs others are going ok but wheres the literature.. like with the artical on spread it opened their eyes.. dr S's pages are just too brief... hey I will try Hooshmands references too.. hmm tks again

Sandra

My chest is scarring me and I wonder why my doctors are not taking it seriously, like they don't believe it can happen like this and lord knows WCB isn't taking it seriously.. I don't want to prove it to them by having a heart attack.

Any clinical trials I wonder?

I know there are a lot of people on here that don't like Hooshmand. Unfortunely we had lost some good people off of the Braintalk forum due to people putting them down for going to him. I realize everyone has their own opinion and that's ok.

I have never been to him. I do have his book and I bought one for my PCP for Christmas about 5 years ago. I figured if he could learn one thing from the man to help me if was worth it.

My Dr. read the book and did a lot of his medical care that was suggested and helped get me into remission.

I think too now that he is retired and new things are being done for RSD that Drs. think his work is most likely outdated. I don't believe that and have seen some good around here due to blocks and TPI's and certain PT.

I would say there should be more out there to help you and I'm sure more will come on here with some good info.

I have been told I have it in my right side, and my pelvic area so I do know it can go internal. No doubt.

Hopefully you can convince your Dr. that it can go internal.

Ada

Bumping this up... hoping someone else can point us to more on organ involvement!

--piedmont physical medicine --has a RSD section and it talks about organ involvement. Carose

Thanks Carose that is the same website as the one in post #2 Dr Schwartz's page by piedmont.. a good resource.. but also not so credible somehow as he is trying to sell ointments etc.. but let me tell ya I'd give a heck of a lot up to see either of these two doctors.

Just spent another day in the ER feeling like something was gonna burst under my right ribs comes and goes in waves bad nasty happenin that no one seems to know what's doin it.. been happenin for quite a while but it realy escalated and scared me enouph to go in.. found out nothing of cource cause no one knows anything.. and they don't connect the dots when they should. I'd sigh but it hurts..

Hugs ya'll
Sandra

Sandra
Just a shot but have they checked your gallbladder??
I had to have mine removed a couple of years ago. I had many tests and it wasn't until they had me do the digestive test where I swallowed some bad tasting stuff and they took pictures of it that they found I had gallbladder disease. I do remember that it was painful.
Hope you get some relief soon
Jeanne

After reading this post asking about organ involvement etc... I found myself wondering what exactly is out there now after many years of having rsd (it's been many years) so i did a quick google on pubmed by typing in only the words reflex sympathetic dystrophy after i went into the pubmed site ... and I was surprised that 152 articles came up.... i didn't read more than a few but I did notice a few that mention organs along with rsd....

(i s'pose one of the interesting things too is that quite a few of the abstracts were recent ( this year or last year) and i was smiling to see that rsd is still being used as a term and not always crps etc...)

Anyway, there is stuff out there, here and there, and the neat thing is to see that yes, rsd is being studied and written about all right....and quite a bit the last year or so.....that's good.....

i think quite a few of rsders have symptoms of organ involvement......

Ina