MrsKnot,

Thank you for sharing those details. That really does raise the specter of multiple possibilities worth exploring. The injury of the foot alone could have caused a nerve issue even without any surgeries. There would certainly seem to be the possibility of nerve issue anywhere from the spine down with what happened.

I can't overstate the importance of finding the right specialist. Whether this is neurosurgery or someone in plastics and reconstruction who did a fellowship in peripheral nerve I can't say. There are options for trying to find a problem. MRI specific to nerve is available as is peripheral nerve ultrasound. A peripheral nerve specialist trained in the "scratch collapse" test can locate a lesion or entrapment non-invasively in many cases. Nerve conduction studies can be ordered if they haven't been done.

Turn every stone to be sure there isn't something treatable. In cases of nerve injury, even very complicated cases can be helped by repair. And if it is CRPS that is being caused by a nerve problem treating the issue can change the outcome for the better.

God bless you both MrsKnot. My thoughts and prayers are with you.

I had a "trigger" (car accident / contusion (aka dashboard injury)) when it got to my knees & legs. But when it spread to my shoulders/arms/hands in 2008 there was none. NONE. So you don't need a trigger for it to be CRPS. If it is, I hope they find something that works soon.

I couldn't stand Lyrica and my neurologist insisted I try this because it was supposed to be "better" than Neurontin. When I had taken my first dose, after a while, I got a terrible migraine triggered by a totally empty stomach feel and I had just eaten dinner (I was stuffed). Suddenly I felt as if I hadn't eaten in DAYS. Terrible; and of course that triggered a migraine. I couldn't take it, so back to the Neurontin it was.

I do fine pain wise on Neurontin & buprenorphine (but I have late stage CRPS in both legs).