Go Back   NeuroTalk Support Groups > >

Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

FCE Tomorrow

Reply
 
Thread Tools Display Modes
Old 05-02-2017, 04:26 PM   #1
catra121
Senior Member
 
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,774
Default FCE Tomorrow

I have a functional capacity exam tomorrow. I am scared of how much pain it will cause but I know it's important to go through it and do the best I can. It's supposed to lasts 5 hours (I assume some of that time is to build in some breaks though...I hope anyway). I just know I will be in a flare up after (well...probably during)...and that my pain will probably be elevated for days or weeks after. I've never been to one of these before and I am so nervous. Hopefully it is worth it.
catra121 is offline   Reply With Quote
"Thanks for this!" says:
Littlepaw (05-10-2017), RSD ME (05-04-2017), St George 2013 (05-04-2017)
Old 05-03-2017, 10:26 AM   #2
Becca71
Member
 
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 190
My Mood: FCE Tomorrow
Default

I haven't done one of those, but it sounds intimidating. However I know that many of my disability appointments took far less time than what they quoted to me. One they said 2 hours and I was in with the doctor for about 30 mins. The other time (about 15 mins for me) was filling out a form. Perhaps they allowed more time because some people need more time for the form, but certainly not an hour for two pages.

I hope it doesn't make you too miserable.
Becca71 is offline   Reply With Quote
"Thanks for this!" says:
catra121 (05-03-2017), Littlepaw (05-10-2017), RSD ME (05-04-2017), St George 2013 (05-04-2017)
Old 05-03-2017, 05:56 PM   #3
catra121
Senior Member
 
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,774
Default

Just got home. Left the house at 8am and got back after 5:30pm. The appointment took the full 5 hours and I am pretty sure I didn't even complete all the tests (many she stopped me very early on). My right thumb is about all that's working right now but wanted to update you guys. She said multiple times that she appreciated the effort I put in. She wants me to email her the next 3 days to let her know how I am doing...and if this moment in time is any judge I think I will be in bad shape for several days. Not quite a 10...but very close to it and she said I will also probably be very sore on top of the pain. I'm already arranging for help the next few days because I know I will need it more so than even usual. Have to wait until the boyfriend gets home but Im going to probably have him help me into the bath tub after the little one goes to bed and then help put some Lidoderm patches on to help mitigate this pain because everything hurts. Fingers crossed that it was worth it...
catra121 is offline   Reply With Quote
"Thanks for this!" says:
Littlepaw (05-10-2017), RSD ME (05-04-2017), St George 2013 (05-04-2017)
Old 05-04-2017, 09:03 AM   #4
RSD ME
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
My Mood: FCE Tomorrow
Default

I hope you feel better soon Catra. I don't understand why they put you through that pain. My dr told me that aggravating rsd can cause more flare ups. It doesn't sound like they know what rsd really is. If I were you I would check with a dr who is educated about rsd and see what he thinks. In the meantime, I will pray your flare ups subside soon. I am sorry I didn't see this post sooner. I was having alot more pain then usual due to my rsd the past few days and haven't been online that much. Sending virtual hugs and healing thoughts your way my friend.
__________________
RSD ME
.
RSD ME is offline   Reply With Quote
"Thanks for this!" says:
BioBased (05-04-2017), catra121 (05-04-2017), Littlepaw (05-10-2017), St George 2013 (05-04-2017)
Old 05-04-2017, 10:36 AM   #5
BioBased
Member
 
Join Date: Jun 2015
Posts: 609
My Mood: FCE Tomorrow
Default

It does seem counter intuitive to make the injured do things which will cause them to have flares. Before I was diagnosed I went through one of these exams and I tried valiantly to overcome my weaknesses so that I could continue to work. I know now that RSD is not one of those "over do it and you will be fine" issues. It is "over do it to suffer for days, if not weeks."

My latest trial is trying 1lb weights on my legs to see if I can build up to greater weight so that I can eventually walk on a treadmill. I did have a negative response from yesterday's wearing of 2 hours, my RSD foot shocked me all night long, even frankincense oil did not help. I will just have to use the weights for fewer hours. This response is also likely because I worked out on a stationary bike in the morning and also attended a balance class in the afternoon. Too much in one day.
BioBased is offline   Reply With Quote
"Thanks for this!" says:
catra121 (05-04-2017), Littlepaw (05-10-2017), RSD ME (05-04-2017), St George 2013 (05-04-2017)
Old 05-05-2017, 08:05 AM   #6
catra121
Senior Member
 
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,774
Default

Thank you guys. I wanted to reply yesterday but my hands have been in a severe bone crushing flare since Wednesday night.

The functional capacity exam isn't for treatment or even diagnosis. The reason I needed to get one was so that it will serve as a form of "proof" for the courts/insurance companies on how the pain impacts my ability to function and perform tasks...ie...work. There is no test that can measure pain...but a functional capacity exam is (supposedly) designed to assess a person's ability to work and perform tasks.

I definitely went all in and did the best I could but an paying for it. I haven't slept more than 2 hours since the test because the pain is just awful...but my hands are by far the worst. I have to email the therapist who did the test every day for 3 days after the test to update her on my condition...so that is supposed to be included in the report as well.

Fingers crosses...the report that we get helps prove our case to the insurance companies so that I can get the benefits that I need.
catra121 is offline   Reply With Quote
"Thanks for this!" says:
BioBased (05-05-2017), Littlepaw (05-10-2017), RSD ME (05-05-2017)
Old 05-05-2017, 08:19 AM   #7
catra121
Senior Member
 
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,774
Default

I agree...it's definitely an overdo it and you will pay for days, if not weeks condition. I went in with eyes open though because the functional capacity exam is my best chance to receive the benefits I need from the insurance companies. It is incredibly frustrating to know that I felt I NEEDED to put myself in this pain just to "prove" what my doctor and I already know...and there's still no guarantee that the report with show what I want it to because I did the absolutely best I could and used every ounce of effort I had in me...and there's always a chance that the "one off" effort (despite it's consequences) will show more than I can consistently do. But...I have to have faith because I know I did my part that the test takes all of that into account...because it's really all I have besides my doctor's notes, records, and opinions (which weren't enough to prevent the initial denial of benefits so that is why we felt the need to go forward with the FCE).
catra121 is offline   Reply With Quote
"Thanks for this!" says:
Littlepaw (05-10-2017), RSD ME (05-05-2017)
Old 05-05-2017, 08:36 AM   #8
RSD ME
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
My Mood: FCE Tomorrow
Default

Catra, my dr told me that doing procedures that cause more pain could also possibly cause spread. Is there a way you could check with your dr about that and see if he could give you a note stating that so that they don't put you through that again. I am not a dr and am not trying to tell you what to do, I just don't want to see you in anymore pain or have spread because of tests that you were told to do to prove you are in so much pain. I would like to think that if the people giving you these tests realized the further damage they could do to your health, then maybe they would think twice about putting you through these horrible procedures. I just hurt for you. I don't want to see you in anymore pain then you are already in and I don't want you to get rsd spread. I may be wrong but am just worried about you. Hope you feel better soon. Hugs.
__________________
RSD ME
.
RSD ME is offline   Reply With Quote
"Thanks for this!" says:
BioBased (05-05-2017), catra121 (05-05-2017), Littlepaw (05-10-2017)
Old 05-05-2017, 03:19 PM   #9
catra121
Senior Member
 
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,774
Default

I definitely appreciate that. Thank you. Hopefully I won't have to go through another one of these exams. The therapist seemed really good and she did stop me several time to prevent me from hurting myself further, let me rest whenever I needed it, and respected me if I said I couldn't do a task (or couldn't do more). I tried everything...but there was one thing I just could not do even after 2 attempts. I did appreciate that they had a HR monitor on me the whole time and took my blood pressure multiple times (especially after I experienced dizziness). Those are measurable things that can't be faked and they should add weight to my case as measurable observations that corroborate my pain levels/symptoms.

I have experience so much spread already...though I am aware that there are still some places it could spread to that I am (so far...knock on wood) RSD free. Hopefully there will be no need for any more of these tests in the future...but in this instance I felt it was worth the risk...and fingers crossed it was worth my current pain levels.

Thank you as always for your concern and kind words. It does mean a lot to me.
catra121 is offline   Reply With Quote
"Thanks for this!" says:
BioBased (05-06-2017), Littlepaw (05-10-2017), RSD ME (05-05-2017)
Old 05-10-2017, 08:43 AM   #10
Littlepaw
Senior Member
 
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,536
Heart

Dear Catra,

I hope your flare is settling now and you get a good report. The exam sounded very anxiety producing. It took a lot of courage to get in there and really give it everything. You have been so brave through all of this. We are all hoping for the best for you.

Sending hugs and healing love,
__________________
Littlepaw

Shine Your Bright Light
Littlepaw is offline   Reply With Quote
"Thanks for this!" says:
catra121 (05-12-2017), RSD ME (05-13-2017)
Reply

Tags
elevated, flare, nervous, pain, tomorrow

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
going to the man tomorrow eva5667faliure Spinal Disorders & Back Pain 0 10-17-2011 09:09 AM
ENT tomorrow Annie59 Myasthenia Gravis 11 01-05-2011 06:11 PM
Tomorrow is the big day!!! tchr012 SCS & Pain Pumps 8 12-01-2010 08:51 PM
Tomorrow I get the scs lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 6 11-20-2007 05:10 AM


All times are GMT -5. The time now is 12:03 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy