Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-30-2007, 03:54 PM #21
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Quote:
Originally Posted by Sandel View Post
Now I ho'ed and hum'ed over whether to post this or not then decided that if this were the case then we need to focus more on getting the word out there individualy as well.. and wow Christine what a great idea, and it maters not the organisation just how well they are prepared for the influx of curiouse questions and queirys.. Also lets pick a month and everyone blitz their papers with a day in the life storys of our lives since RSD.. Lets wake up the world to this demon and hope that we can save another life from it.

Hugz,
Sandra
I was thinking we could all sign up for American Idol - BILLIONS OF PEOPLE WATCH - and instead of singing, we could all say: I am here not to sing but to raise awareness for Reflex Sympathetic Dystrophy. Say 15,000 people are there to sing, well then add another 2,000 to each city of just RSDers and we can start spreading the word. Just an idea.
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I AM NOT A DRUG SEEKER,
I AM A PAIN RELIEF SEEKER.
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Old 07-30-2007, 08:58 PM #22
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Default Hi Christine,

I am sure they would vote you off of there by talking about the RSD. I have an even better ideal. Why don't you write a song about RSD and what it does to people and put it to music and sing it on there?

We can vote. We could all vote for you.

Ada
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Old 07-31-2007, 01:11 AM #23
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After seeing AI I know a lot of people say this, but, I have a voice and can sing. I just can't write and put tunes to songs. It amazes me when another singer makes a new song with a new beat and it sounds original and good.

If you write it and let me know the tune, I'll sing it. My only other problem is age limit. You have to be under a certain age to qualify for AI. But, I could find other people to promote me
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Old 07-31-2007, 10:52 AM #24
Goodn'Plenty Goodn'Plenty is offline
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Default don't want to get anyone excited

but I have an idea or seven percolating
As soon as my brain and life is on a more even keel I have some meetings
set up - I do live in LA after all
They have been in formulation for quite some time - whether they lead anywhere is another story .
I am hoping that they will.It won't happen overnight if I want to do this well but I am hoping and hopeful that it will happen.


I will post on an as need to know basis .


I have debated long and hard whether to say anything as i don't want to count any chickens before they are hatched


Peace

GnP
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Old 08-01-2007, 12:26 AM #25
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Good luck GnP in your endeavor. Can't wait to hear your updates. If you should need any help let me know, I could use some mindful activities.
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I AM NOT A DRUG SEEKER,
I AM A PAIN RELIEF SEEKER.
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