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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-19-2007, 02:43 PM   #11
Rainbow422
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Thumbs up Parc

Don't know if this is a repeat but I love this site. The area where members suggest and give advice was really helpful for me.

This is Canada's, promoting awareness of RSD and Crps

http://www.rsdcanada.org/parc/english/index.html
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Old 01-24-2007, 09:02 PM   #12
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Here are some RSD forum sites:
http://groups.msn.com/RSDWontBringMeDown
http://groups.msn.com/RSDOutreach/welcome.msnw
http://z6.invisionfree.com/HELPRSD_F...ex.php?act=idx
http://groups.msn.com/InHishandswith.../messages.msnw
http://rsd-crps.co.uk/phpBB2/index.php

THIS site is the very very very best RSD/ CRPS forum I've found, though! I love it here, and have gotten lots of help, ideas and suggestions.

Last edited by InHisHands; 01-28-2007 at 07:34 PM.
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Old 01-26-2007, 05:06 PM   #13
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Thank you - this is a terrific list.
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Old 01-28-2007, 07:30 AM   #14
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RSD fact and fiction:
http://www.rsdhelp.co.uk/facts.htm
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Old 02-05-2007, 09:12 PM   #15
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http://www.upmc.com/HealthManagement...chunkiid=96853

http://www.pain.com/sections/pain_re...rch_phrase=rsd
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Old 02-05-2007, 09:14 PM   #16
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Just found this... maybe someone here is interested

http://puppybraille.livejournal.com/tag/surgery

This lady is blind and has RSD.
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Old 02-19-2007, 11:16 AM   #17
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http://www.rsdawareness.com/
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Old 02-22-2007, 11:06 AM   #18
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Medications /Interaction checkers and Pill Identification links


http://www.drugdigest.org/wps/portal...zdGVwL2luZGV4/

http://www.drugs.com/drug_interactions.html

http://gsm.about.com/interact/inter.asp

http://www.healthatoz.com/healthatoz...gGuideHome.jsp

http://www.pharmer.org/identification


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Old 02-25-2007, 11:28 AM   #19
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http://rsdescape.com/
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Old 03-05-2007, 10:53 AM   #20
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I urge everybody to download both PDFs from the http://pdver.atcomputing.nl/english.html site, listed again at the bottom of this post, and take them along to your doctor.

The Dutch are streets ahead when it comes to dedicated research into RSD/CRPS and associated neuropathies, they have just published "The Evidence Based Guidelines Development (EBGD) Guidelines on Complex Regional Pain Syndrome type I (CRPS-I) dealing with the diagnosis and treatment of CRPS-I" published in 2006, which I site below.

To read more about the developments in Holland, here's a good rundown provided by the Canadian PARC site. The research list starts with the oldest, and although you may be inclined to skip the older publications, reading it all from the top gives you a very good insight into how their thinking has emerged. Lots of cutting edge stuff on DMSO and oxygenation here.
http://www.rsdcanada.org/parc/englis...anderlaan.html
"A huge committee of doctors, researchers and experts in Holland worked tirelessly for 5 years to write the standard treatment protocols for treating CRPS in Holland. Now every Dutch patient can benefit from these very important guidelines."

Here is the Guidelines link:
http://pdver.atcomputing.nl/english.html
EBGD Guidelines CRPS type I 2006
The Evidence Based Guidelines Development (EBGD) Guidelines on Complex Regional Pain Syndrome type I (CRPS-I) dealing with the diagnosis and treatment of CRPS-I were published in 2006. These guidelines were drawn up by a large number of Dutch medical practitioners in association with the Netherlands Institute for Healthcare Improvement (CBO) and adopted by the relevant scientific professional associations. Our patients association was also involved in drafting the guidelines.

The EBGD Guidelines on CRPS-I have been written to give practitioners more clarity in dealing with this condition, help them coordinate treatments more smoothly, and give the same information to their patients. The guidelines contain recommendations for practitioners to back up everyday practice.

The guidelines are the outcome of scientific research and opinions of experts, drawing on evidence to reach conclusions and recommendations. The evidence consists principally of articles on scientific studies into CRPS-I, which were assessed for their quality on the basis of EBGD assessment forms. Articles of moderate or poor quality were excluded. If you would like to read about the EBDG guidelines development process in full, go to the CBO website and click on Guidelines Development.

The guidelines do not have the force of law, but contain sound scientific ideas and recommendations that have broad support and should be used by practitioners in order to provide good care.

A separate guideline text has been developed to educate patients about their disease, and to present a non-scientific insight into the practitioners version. We hope that this patient version will give all patients a good understanding of the treatment options available and will help you decide on the right treatment in consultation with your practitioner.

Netherlands Association of Posttraumatic Dystrophy Patients
I.L. Thomassen-Hilgersom, chairwoman

Read/download the EBDG Guidelines 2006 on CRPS type I, practitioners version (PDF file).

Read/download the EBDG Guidelines 2006 on CRPS type I, patient version (PDF file).
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