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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-29-2006, 02:16 AM   #1
Bobbi
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Arrow Useful Websites & Links

Australian Reflex Sympathetic Dystrophy Support Group
http://www.ozrsd.org/

Canadian RSD Network
http://www.canadianrsd.com/

Complex Regional Pain Syndrome
Information about complex regional pain syndrome from the American Academy of Family Physicians.
http://familydoctor.org/238.xml

Complex Regional Pain Syndrome Information Page
http://www.ninds.nih.gov/disorders/r..._dystrophy.htm

For Grace - Changing the World of RSD
http://www.forgrace.org/

International Reflex Sympathetic Dystrophy Foundation
http://www.rsdinfo.com/

Pain Information
http://www.painrelieffoundation.org....ninfo_rsd.html

Pain Medicine & Palliative Care: Pain Medicine
Complex Regional Pain Syndrome (CRPS)
http://www.stoppain.org/pain_medicine/crps.html

Reflex Sympathetic Dystrophy
http://orthoinfo.aaos.org/brochure/t...m?Thread_ID=50

RSD Alert
Information about Reflex Sympathetic Dystrophy Syndrome, including personal experience, data and links to support groups.
http://www.rsdalert.co.uk/

Reflex Sympathetic Dystrophy Association of America
http://www.rsds.org/

Reflex Sympathetic Dystrophy Association of California
http://www.rsdsa-ca.org/

Reflex Sympathetic Dystrophy UK Online Support Group
http://www.rsd-crps.co.uk/
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Old 09-21-2006, 09:03 AM   #2
Jennybean
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Default Another interesting site

http://www.rsdhope.org/
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Dx: RSD d/t fractured ball of foot
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Old 11-04-2006, 11:58 PM   #3
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http://www.healiohealth.com/rsd-refl...-syndrome.html

******************************************
from-
http://www.rsdrx.com/rsdpuz4.0/puz_6.htm
RSD PUZZLE #6
Physical Therapy

"There have been references in the literature that physical therapy can aggravate pain and RSD. Yet in every outline of treatment for RSD, the use of physical therapy is emphasized. These two statements seem to be contradictory."

Both statements are absolutely true. Excessive exercise and physical therapy that causes fatigue, pain, and distress to any part of the body, only flares-up and aggravates the inflammation and pain of RSD. On the other hand, the commonest aggravators of RSD are bed rest, inactivity, application of ice, and the use of assistive devices. In RSD, the best treatment is eustress not distress.

Distress refers to the stress of prolonged bed rest and inactivity. Like any other machine, prolonged idling of the body is distressful and causes damage to the body. Especially in RSD, the prolonged bed rest results in aggravation of pain and insomnia. The RSD patients suffer from severe, chronic insomnia due to the constant allodynic pain as well as due to the aggravation of constriction of blood vessels secondary to inactivity. One of the earliest signs of RSD is a restless night with the patient constantly being fidgety and changing position all night as well as having to get up and walk to get some relief.

The second form of distress is too much exercise, prolonged physical therapy.

The RSD patient has to learn that they will have pain with too much exercise, and the patient will have more pain without exercise. The patient will have to find a happy medium. The patient will have to rest and exercise frequently. Three days a week in the P.T. Department is not enough. The RSD patient should continue the instructions of the physical therapist from morning to night with equal periods of rest and exercise. The patient should learn from the human heart which beats approximately once a second for 80 to 90 years without taking a vacation. The reason is the heart beats half a second and rests half a second. The same principle should apply to physical therapy in RSD.



H. Hooshmand, M.D.
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Old 11-18-2006, 02:58 PM   #4
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Default Directory of open access journals

http://www.doaj.org/
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Old 11-26-2006, 12:55 AM   #5
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a variety of links - Pain/RSD/CRPS - various therapies

Chronic Pain Resources
(great handbook on pain and common treatments)lifeinpain.com/book/print/10
(great list of popular and medical books on pain) www.noigroup.com/booklist.html
(lots of self help articles on dealing with pain) www.painsupport.co.uk
(an osteopath's view of a number of conditions) www.painrecoveryonline.com
(pain and the law) www.painandthelaw.org/intro/index.php
www.partnersagainstpain.com
www.painconnection.org
www.NationalPainFoundation.org
(collection of links) members.tripod.com/~Catnip100/LINKS.html

Reflex Sympathic Dystrophy, Complex Regional Pain Syndrome
(RSD and RSI) www.ctdrn.org/rsinet/archive/rsinet36-mar99.html
(what is RSD and other RSD questions) www.rsdrx.com/rsdpuz4.0/001.htm
(mayo clinic treatment algorithm, Feb 2002) http://www.mayoclinicproceedings.com...sp?AID=39&UID=
www.acofp.org/member_publications/canov_02.html#
www.rsdhope.org
www.rsdsa-ca.org

General Medical Sites
Anatomy
(muscles) www.teleemg.com/new/musqa.htm
(muscles) http://www.meddean.luc.edu/lumen/Med.../mml/index.htm
(perhiperal nerves) www.teleemg.com/new/pnsqa.htm
(nerve entrapments) www.teleemg.com/new/layarmleg.htm
(nerve) www.med.mun.ca/anatomyts/nerve/nerve.htm
(upper body dermatomes) chirogeek.brinkster.net/upper_dermatomes.jpg
(lower body dermatomes) http://www.chirogeek.com/000_Sciatic...nfor.htm#ccccc
(nerve - dermatomes) www.aafp.org/afp/971200ap/mcknight.htm
(very comprehensive eduational anatomy site, muscles, veins and arteries, nerves )mywebpages.comcast.net/wnor/homepage.htm

Medical Research Sites
(free comprehensive database of summaries of medical research) www.Pubmed.org
(service to order medical journal articles) mountzion.ucsfmedicalcenter.org/library/loandoc.html
(list of medical libraries open to the public) www.nlm.nih.gov/medlineplus/libraries.html
(selected medical journal articles) www.medscape.com

Prescription Drug Information
(physcian's drug info sheets translated for lay people) www.pdrhealth.com/drug_info
www.rxlist.com
www.drugintel.com/

HNPP
http://www.hnpp.org/varieties.htm
http://www.hnpp.org/surgery.htm
http://www.hnpp.org/symptoms.htm

Triggerpoints and referred pain and stretching:
http://www.triggerpointbook.com/index.html
http://triggerpoints.net/_sgg/m1m1_1.htm
http://www.pressurepointer.com/pain_reference_chart.htm
http://altmedicine.about.com/library...ressure+points
http://www.drlowe.com./triggerpoint.htm
http://www.erikdalton.com/articleduramater.htm
http://deeptissue.com/learn/learn.htm
http://www.edgelow.com/
http://www.rossiter.com/aboutus/tellmemorerossiter.asp
http://www.egoscue.com/htdocs/index.asp
http://www.rsirescue.com/
http://www.cascadewellnessclinic.com...s/tip0008.html
http://www.purehealthsystems.com/mus...in-relief.html
http://www.alaskaelectrolytes.com/
http://www.howibeatrsi.com/
http://www.emofree.com http://www.emofree.com/downloadeftmanual.asp
http://www.trigger-point-injections.com/index.htm

Myopulse
http://www.drkaslow.com/html/physical_therapy.html
http://www.drkaslow.com/html/our_man..._approach.html

Postural work/info
http://www.somaticsplus.com/ws2.html
http://www.om-rehab.com/treatments.htm
http://www.sportsinjurybulletin.com/...acic-spine.htm

Chiropractic care info- a good one can help with many symptoms:
http://www.upcspine.com/self.htm
http://www.uppercervical.org/subpag...b/about_faq.php
http://www.spineuniverse.com/index.html
http://www.coloradochiropractic.org/.../glossary.html

Anatomy links
http://www.gwc.maricopa.edu/home_pag...rial_Small.htm
http://www.gwc.maricopa.edu/class/bi...cle/mustut.htm
http://www.meddean.luc.edu/lumen/Med...em/learnit.htm
http://mywebpages.comcast.net/wnor/homepage.htm
http://catalog.nucleusinc.com/genera...=&TL =512&A=2
http://www.ptcentral.com/muscles/
http://www.realbodywork.com/

ART-active release technique
http://www.google.com/search?client=...=Google+Search

Electrotherapy
http://www.vitality-web.com/backstor...Stimulator.htm
http://www.medi-stim.com/overview.htm
http://www.rehabpub.com/features/82004/3.asp
http://www.spine-health.com/topics/c...ctro/el01.html
http://www.skylarkdevice.com/web-site/ele_thera.htm
http://www.bmls.com/electrodes/epc.php
http://rehabilicare.com/protocol.html

Laser/ Infared/ far infrared
http://laser.nu/
http://www.purehealthsystems.com/infrared.html
http://www.purehealthsystems.com/mus...in-relief.html
http://www.toolsforwellness.com/far-infrared.html

CMPS & RSD
http://www2.rpa.net/~lrandall/fmslog.html
http://www.geocities.com/barmellin/myo.html
http://members.aol.com/fibroworld/mps.htm
http://thyroid.about.com/od/fibromy...instarlanyl.htm
http://www.triggerpointbook.com/index.html
http://www.triggerpoint.fcpages.com/_sgt/f10000.htm
http://www.triggerpointbook.com/triggerp.htm
http://www.medicineau.net.au/clinic...Myofascial.html
http://www.sover.net/~devstar/
http://www.rsdinfo.com/
http://www.rsdhope.org/ShowPage.asp?PAGE_ID=4
http://www.rsds.org/2/what_is_rsd_crps/index.html
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Old 11-26-2006, 12:59 AM   #6
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more links- alternative health/ergonomics/dx/ergo/voice software

Medical/Wellness/Alternative
http://www.wellnessresources.com/pro.../protocols.htm
http://www.vitamin-insight.com/dieta...anagement.aspx
http://www.nwhealthsolutions.com/
http://www.mercola.com/index.html
http://www.consumerlab.com/
http://www.youngagain.com/wellnesstest.html

Homeopathy
http://www.abchomeopathy.com/simplified.php
http://www.hmedicine.com/news/guide/single/singles/all
http://www.webhomeopath.com/en/jsp/login.jsp

Alternatives
http://www.holisticmed.com/www/bodywork.html
http://www.whatreallyworks.co.uk/sta...article_ID=253
http://www.wendi.com/html/pain.html
http://www.NationalPainFoundation.org
http://www2.rpa.net/~lrandall/index.html

RX helpers
http://www.drugintel.com/
http://www.drugs.com/drug_interactions.html
http://www.drugdigest.org
http://www.drugdigest.org/DD/Home/0,4082,,00.html

Diagnosis helpers
http://www.wrongdiagnosis.com/
http://myelectronicmd.com/
http://www.medical-library.org/mddx_index.htm
http://www.google.com/search?q=suppl...en-USfficial
http://www.lifechallenges.org/create/creative.html

Ergonomics links:
http://www.working-well.org/index.html
http://www.remedyint.com/ergoanswers/wrist_hand.html
http://www.office-ergo.com/alternat.htm
http://ergo.human.cornell.edu/ErgoTi...tationmain.htm
http://www.cdc.gov/niosh/topics/ergonomics/
http://ergonext.com/

voice software
http://ivos.comunx.com/
http://www.talkingdesktop.com/frequent.htm
http://office.microsoft.com/en-us/as...664011033.aspx
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Old 11-26-2006, 09:42 AM   #7
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Post RSD Puzzles

Dr Hooshmand's site tries to answer the questions you may have about your RSD/CRPS here:

http://www.rsdrx.com/rsdpuz4.0/001.htm

An excelent resource I recomend it.
Sandra
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Old 12-08-2006, 12:21 PM   #8
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I don't know if this will work or fit for RSD but for those that have other pain /muscle conditions it might.

Default The Institute for the Study and Treatment of Pain
this link was posted on the sorehand email list -

I haven't seen anything like it posted here yet
{I may have just missed or forgotten about it}

http://www.istop.org/homecontent.htm

http://www.istop.org/maintreatment.htm

[Intramuscular Stimulation (IMS)
Supersensitivity and muscle shortening cannot be operated on and ‘cut away,’ while ‘painkillers’ and other analgesic pills only mask the pain (often poorly) and promote toxicity, compounding the problem. Neuropathy only responds to a physical input of energy.

Intrasmuscular Stimulation (IMS) is a total system for the diagnosis and treatment of myofascial pain syndromes (chronic pain conditions that occur in the musculoskeletal system when there is no obvious sign of injury or inflammation). IMS is grounded in Western Medical Science, and has a solid foundation in its radiculopathic model of pain, which is now supported by many experts in the field. The treatment, which utilizes acupuncture needles because they are the thinnest implements available that are designed to penetrate deep within muscle tissue, specifically targets injured muscles that have contracted and become shortened from distress.]

READ Dr. Gunn's paper on Intramuscular Stimulation: The Technique (PDF) http://www.istop.org/newbrowserpages.htm/imspaper.pdf
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Last edited by Jo*mar; 05-20-2009 at 12:13 AM.
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Old 12-29-2006, 08:03 PM   #9
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Default Another good site...

Another good site...

www.rsds-crps-news.blogspot.com
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Old 01-18-2007, 11:35 AM   #10
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posted on the forum by LisaM but I wanted to add it here too.

[I always, always, always check out my new meds here:

www.askapatient.com

because these are REAL PEOPLE who have taken the medications and post their experience with them. I have found that many times people have similar experiences with drugs, that probably SHOULD be listed as a side effect in the pharmaceutical insert, but isn't. I also read that page because I want to know if something I experience while on the medication was experienced by anyone else. The package insert does't always tell you everything.]
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