Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-11-2017, 11:31 PM #8
gigicnm gigicnm is offline
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Join Date: Sep 2014
Location: Massachusetts
Posts: 55
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gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
10 yr Member
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I don't have any other suggestions for the allodynia. My CRPS is is the same place and the only thing I have had any luck with is a Tommy Copper compression sleeve. No other brand!

As far as the heat intolerance, I do have a suggestion. I have a very open-minded pain doc. He is willing to think outside of the box and try anything new. He put me on a combo of memantine, minocycline, and metformin. I couldn't tolerate the combo (though it really helped the pain). I found through trial and error that Minocycline 100mg daily (the same low dosage that you would take for acne) has made my heat intolerance 75% better.

I was able to find some research on how monocycline helps CRPS symptoms (not specifically heat intolerance but symptoms in general). I am just so relieved to not have sweat dripping down my hairline all day.

Best wishes,
Gigi
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RSD ME (06-11-2017)
 

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allodynia, arms, heat, intolerant, venting


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