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Help managing allodynia - I need ideas / support

 
 
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Old 05-15-2017, 09:31 AM #13
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ShaggyChic_1201 ShaggyChic_1201 is offline
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Join Date: Sep 2014
Location: Midwest, USA
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ShaggyChic_1201 ShaggyChic_1201 is offline
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ShaggyChic_1201's Avatar
 
Join Date: Sep 2014
Location: Midwest, USA
Posts: 86
10 yr Member
Default drugs, drugs, drugs :)
Quote:
Originally Posted by CRPSbe View Post
The only thing that helped me with allodynia and the burning / terrible ice (in my case) was Neurontin / Gabapentin, so that's an anti-convulsant to help with nerve pain, because allodynia = nerve pain.

That is the *only* thing that helped me with that.

What medications are you on, if any?
Thanks all for responding! I feel the love and give it back.

Right now the pain doc and I have settled on 3000mg of gabapentin, 600mg of oxcarbazapine (trileptal), 120mg of Cymbalta and 5mg oxycodone PRN which works out to be 2-3/day.

The meds I've tried could be a whole page (I was diagnosed in 1998 but had been suffering for a few years before). At one point I really liked Catapres patches, but my blood pressure is too low to support it these days (I've lost weight as a result of having a hard time cooking and no desire to eat).
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"Thanks for this!" says:
RSD ME (06-11-2017)
 

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allodynia, arms, heat, intolerant, venting

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