Quote:
Originally Posted by gigicnm
I don't have any other suggestions for the allodynia. My CRPS is is the same place and the only thing I have had any luck with is a Tommy Copper compression sleeve. No other brand!
As far as the heat intolerance, I do have a suggestion. I have a very open-minded pain doc. He is willing to think outside of the box and try anything new. He put me on a combo of memantine, minocycline, and metformin. I couldn't tolerate the combo (though it really helped the pain). I found through trial and error that Minocycline 100mg daily (the same low dosage that you would take for acne) has made my heat intolerance 75% better.
I was able to find some research on how monocycline helps CRPS symptoms (not specifically heat intolerance but symptoms in general). I am just so relieved to not have sweat dripping down my hairline all day.
Best wishes,
Gigi
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Gigi, What a great doctor you have! For me, it's mostly heat pain that bothers me. My underarms/arms don't sweat at all but the backs of my hands can start dripping! Guess it's gotta go somewhere
Can you share the research you referenced above re: minocycline. It sounds interesting. I also read that triptans help migraine sufferers who get allodynia during an attack. I wonder if anyone has studied whether it works on people who don't get migraines but have allodynia.
Lori
05-15-2017, 09:38 AM
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