Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-29-2007, 01:50 PM #11
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that is true they are broken blood vessels and are like a blood blister I get them on my RSD side and my doc is aware of them, get used to it sorry but like I said it is part of RSD, also it is caused by high blood pressure too, we with RSD just have too many things going wrong with us sorry you have them but it is just part of this horrible monster
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Old 07-29-2007, 08:11 PM #12
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Roz,
I have seen this with our family. Something else too...along nerve line like a shingles pattern, but not.
It is tiny blood blisters mainly on the finger tips or finger/hand....the others are along a nerve line and can actually scab.

Mine I get on the upper trapizius area, De her fingers, my son anywhere.
I can feel them along my upper back, little scabs the most.
My son actually got it on the rhemboid line almost a shingle, but blood blisters.

So I think it is tips of nerves,,,,they react to our screwed up hyper nerve activity and BINGO, that is what pops out....

Just my brain storm theory how we relate it to the Doc's as they scratch their head.

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Old 07-31-2007, 07:08 PM #13
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[QUOTE=tayla4me;129430]They aren't blood blisters, they are just areas of skin that breaks down, ulcerate and gets infected over and over again./QUOTE]

This sounds exactly how mine are, too. Good description!

When mine start to clear up, they then get covered by large amounts of "layered" dry skin. Does anyone else have theirs do that when they clear? Then, of course, the process just begins all over again.

My doctor prescribes me two different cremes for these, which work well in combination to lower the discomfort these cause. One is an antibiotic creme. If anyone is interested in knowing what these cremes are, please ask and I'd be more than happy to tell you, although I know one of the biggest issues us RSD'ers face is that what works for one person, doesn't necessarily work for another.
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Old 08-01-2007, 03:54 PM #14
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Yes, this sounds very familiar. They are very much like blood blisters but with no discernable reason. Thes will sometime stay for weeks without changing, and then either subside or open. The number of lesions seems to increase with higher pain levels.

mike
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Old 08-01-2007, 08:13 PM #15
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Yes, they do seem to be worse during bad pain flare-ups! I guess until I read what you wrote I really hadn't thought about it, but it's true!
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Old 08-01-2007, 09:24 PM #16
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Default Hi Mainiac,

I have 3 under my chin. 2 I have cleared up right now but it doesn't last. I do notice too that when I am in pain then they are worse. They are layered as you said.

What I used that has healed 2 for now is a thing I found in a magazine. It said to take an ice cube and hold it on the place for a couple of seconds and then use eyedrops on it after it dries. It did heal 2 of them but one just doesn't want to heal.

I would be interested in the name of the creams. I wondered if they were connected to the RSD or Fibro.

Ada
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Old 08-01-2007, 10:02 PM #17
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Roz, I am sorry - - that does not seem like a pleasant symptom - so far knock wood for me - I have not experienced it. and same to the rest of you that suffer with this symptom - I hope it is not too painful - the rest of them are bad enough !!! .


If you follow the CNN links of the coma treatment or you go to the www.rsdfoundation.org site
I believe under the symptoms description for RSD you will find pictures of various RSD presentations.Now these things MAY happen to you .They don't have to happen to everyone with RSD !!!!!
You might find your particular symptom there Roz .They show 4 or 5 different external manifestations of the disease .
Bear in mind that all these pictures are worst case scenario pictures -not how all will become with RSD - That is why they took the pictures - as they make a good picture A pink shiny hand may hurt like H*ll but it is not as good television so to speak as an oozing wound, so please don't let this site scare youIt serves a purpose.( I was a little freaked the first time I looked at the site early in my disease process but I have not gone to many of those places ).

On another note RSDers , remember NO ICE!!!!!
I think most of you as a general rule would be best to follow this guideline and are probably aware of it- unless you are told or know otherwise. It is one of the most effective ways to spread your RSD.

I hope some of this information is of use to you

Peace

GnP
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Old 08-02-2007, 12:27 AM #18
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I thought the ice situation was a person by person issue. I do have to use it on my neck for tos migraines Cervogenic, and it does not flare my RSD. If I get the heat changes to my RSD foot though, like blow tourch is hitting it, I use Rice and Ice...
fakes out the signals from the foot and I can catch the flare early with this trick.
It is a Blue gel of ice to sit on floor under the foot for ten econds, and then ten seconds of a bowl of rice, then repeat a time or two. I do NOT have a habitual flared RSD foot though.

My PT taught me this trick for my hands and do it for my foot.
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Old 08-02-2007, 03:17 PM #19
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TO EVERYONE,

ICE should NEVER EVER be used on anyone with RSD. Please ask a RSD specialists. Much Love, Roz
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Old 08-03-2007, 01:13 AM #20
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Roz,
Weird, but I would get them on my legs BEFORE I had RSD. It was probably a year or so before the RSD but not since.
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