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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Junior Member
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My rsd has become more active since about 2 years and recently my sp catheter changing, which i had for years, have become much more painful and leave me sick and without energy for a week or more. A nurse changes it for me. Anyone have problems like this?
Lots of love, Mieke
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With God nothing is impossible
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#2 | |||
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Quote:
What's the catheter for? I'm a little confused. What does your doctor say?
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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#3 | |||
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Junior Member
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A
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It is a catheter through my belly because my bladder doesnt function good anymore after losing my first and only.baby in an ectopic pregnancy, where it was growing in the tube instead of in my womb. My Gp doesn't know what to say about it. I have als a urologist but both of them are not familiar with RSD. The doc that used to treat my RSD sent me home the last time a year ago to take it very easy and move when i can but that for the rest she did not know how to help me anymore......
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With God nothing is impossible
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#4 | |||
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Can you call the support group for names? I'm sure they know by now, through their many interactions with patients, where the specialists are.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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#5 | |||
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Member
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I'd start with the urologist, but also see if you can check back in with your pain doctor. Perhaps this is a spread of the CRPS into the bladder (which is frequently affected in long term patients) and perhaps the uro along with the pain doc can help figure out some help. Do you use lidocaine during the cath change? (Hubby has SP due to MS) I know it can be common to get some bladder spasm during the change, do you take any anti-spasmodics for the bladder already?
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#6 | |||
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Junior Member
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I do believe that there is rsd in my bladder so im not sure if something can be done about it..... Love, Mieke Sent from my LG-H815 using Tapatalk
__________________
With God nothing is impossible
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