Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-01-2007, 11:06 PM #1
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Default What do you think about this

article?

http://www.forbes.com/forbeslife/hea...out605523.html
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Old 08-01-2007, 11:23 PM #2
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Old memory traces?? I don't know, Christine?/ seems to me, maybe I took it wrong.. but seems to me that this article meant It's all in our head"! JMHO here though. thanks for sharing sweetie! Love ya, Desi
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Old 08-01-2007, 11:30 PM #3
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Default Hi Christine,

The ironic part to me is that we do remember the injury as if it happened yesterday but it's not why we deal with the pain though.

I can remember my worst fall, when it was, where it was and what caused it but if we have had years to heal from it and we don't I don't believe that it is in our head. How can a person be in so much pain they want to cut a limb off or kill themselves be told it's in their head? Don't get that one.

Ada
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Old 08-01-2007, 11:39 PM #4
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I can remember the pain during the week of the blood clot, but the entire 2 weeks following the surgery I have no recollection lol.

Not sure if this fits every person. Kinda like some drugs help some, and some dont. It is a good thing though, any advance in medicine cant be all wrong.
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Old 08-01-2007, 11:45 PM #5
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Default Right Church wrong Pew

I think they are on a bit of the right track....One thing to remember the injury, but I don't think the brain can replay it like a tape recorer....I do think the nerves can live in pain signals so long that it developes patterns, preceives pain escalated... Sucj as a soft towel can feel like Brillo going over the skin from hyper pain signals.

We may feel a breeze and the sensory nerves what are they called c-neoceptos adn N-neoceptors get over logged with signals and pain is received BAD!

Central brain syndrome and Allodynia I have heard doctors share with me.

Maybe that is where Dr S gets the ketimine coma or treatments, get the nerves from receiving the signals, a chance to restart like a virgin signal receiver....if the nerves are calmed though....can the brain receiving the signals be the key to the treatment working or not.

Sick nerves don;t heal into healthy new ones....I think things can calm them put them into remissions, and for some blocks, ESI, may help. Just don;t know what helps who. Then there are those through no rhyme or reason...nothing helps.

I think validating the patient, compassion to their pain, donlt load up with anti seizure meds, find a combination of desenstation, anti inflamatory, A clothing type, climate control,
So many variables...
Hey if all else fails, how about a pitcher of harvey wallabangers.....Oh the days of youth.

I did do well with biofeedback, and learning to understand...especially from Dr S and the forum friends.

I am lucky, my hands and left foot it is the area I have problems. My daughter, was full body.
She was Dr S poster child.....he was so paternal with her.
Sorry for typos,
I have been researching for interview technic' for interview tomorrow working theraputicaly with kiddo as an advocate.
I will still keep my other job, but as of latly I have only received 6 hours a week.
Good thread to get brain awake to go read now!
Thanks for sharing,
Dianne

Edited to add the bases of my thoughts...

Is it RSD or Alodynia, interesting read


Here is a link to a small article about the C-fibour nerves and the hyper reactions.

Doctor Togut once explained this to us as the nerve getting hyper signals or misfiring and being read as hyper pain in the C-neoceptors I think he called it.

Worth reading into,
Di

http://www.robertgschwartz.homestead.com/page7.html
THE ANGRY BACKFIRING "C" (ABC) SYNDROME

This occurs when the sympathetic acting fiber becomes angry, or backfires (like a car engine) in response to an underlying injury (usually ligament). The C-fiber is a type of nerve fiber that has the same properties as the Sympathetic nerve. The C-fiber actually causes the pain instead of the sympathetic nerve travel the same course, and act the same way, in terms of their chemical and physical properties. The C fiber spits out various vasodilating (increased blood flow) chemicals such as substance "p", kinens and histamine. Suppose we use the example of a sprained ankle. It would not be suprising if someone did complain of continued burning pain in it. It is also easy to imagine that it could become swollen, discolored and painful to light touch. This does not represent true RSD. The thermogram shows localized vasodilation, and patients usually respond quite will to ligamentous injection, physical therapy, orthotics and the use of vasodilating substance depleting treatment such as capsacin cream. In the ABC syndrome, sympathetic blockade will never work, and in fact only makes the problem worse ( by vasodilating the area further). This readily explains the person who says the block made them worse.

SYMPTOMS

1. Erythralgia - Redness of the skin

2. Alodynia - Light touch is painful3. Warm Hyperalgesia - Warm hurts

4. Cold abolishes the pain

5.Pain burns - Patients will feel like they are burning
6. Axon Reflex - The major nerve itself is backfiring, like a car backfiring. The C-fiber becomes hypersensitive because of this. The nerve itself spits out chemicals that inflames the tissues and causes pain.
7. Neurohumeral mediated - Refers to the chemicals that the nerve spits out.

8. Antidromic Vasodilation on Thermography - Conducts in wrong direction (backwards warming).
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Last edited by DiMarie; 08-02-2007 at 12:20 AM.
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Old 08-01-2007, 11:51 PM #6
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I share your responses. After reading it, my first thought was that one would say it is all in our heads. I get a monthly report from the www.americanpainfoundation.org

This was one of the articles. Just wanted opinions and to see if my thoughts on it were validated, and they were.

Thanks.
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I AM A PAIN RELIEF SEEKER.
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Old 08-01-2007, 11:54 PM #7
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Default Hi DiMarie,

I can't believe how your brain can soak up all of that info and keep it in. My brain soaks it up for a few and then wrings it out like a sponge.

I believe you will get that job as I said in our PM. In the years I have known you, I have always been amazed at how much you can help people on the forums especially the TOS forum. I can give the emotional support but I sure can't keep a lot of the book knowledge in my head. Memory loss is a big thing for me.

This is an interesting subject. Thanks for bringing it up.

Ada
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Old 08-02-2007, 01:10 AM #8
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Quote:
Originally Posted by DiMarie View Post
[FONT="Comic Sans MS"][SIZE="3"]
Hey if all else fails, how about a pitcher of harvey wallabangers.....Oh the days of youth.
1st - vodka/oj for me, make em strong

2nd - I really enjoyed reading your post and found it quite interesting. Thank you.
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Old 08-02-2007, 07:12 AM #9
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Default Interesting article...

I still wonder how they monitor the pain in rats?

"Rat #403...is your pain a burning pain, or more like a stabbing pain?" and ...

Rat # 24, is your RSD feeling numb at all?"

We have to answer to so many questions from our Docs....think of how they know what the heck a rat is feeling? hee hee

It is a good article, something to think about...thanks!
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Old 08-02-2007, 07:56 AM #10
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Hi all,

There are two types of "in your head" one is the type that we respond badly to when it is insinuated that we have control of our pain by "thinking happy thoughts" etc and then the type this article is referring to and that is that our pain is remembered by our brain which is why we still feel it long after the injury has healed.
This is what the mirror box and graded motor imagery programs work on and that is to try and trick the brain into a different mode of thinking.It seems to work well if done by a skilled physiotherapist.
I used to react very badly if I ever thought anyone thought this was a psychiatric illness but the truth of the matter is that there are a small minority of people for whom it is so we all often get tarred with the same brush by some of the medicos
Thanks for the artlicle--it was interesting.
Tayla
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