Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-23-2017, 04:55 PM #1
ENIGMACODE ENIGMACODE is offline
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Default Problem In Right Toe

Hi Gang

I'm a 69 year old injured from right knee replacement surgery in 2012 which caused CRPS/RSD. The problem is mainly in my right leg, ankle and knee. After months of pain in my right toe, I accidentally bumped it a few days ago and now I'm seeing classic symptoms: Shine on the skin, inflamation and the area around the nail is weeping and bleeding. I've been soaking the foot in epsom salts and occasionally wipe the area with hydrogen peroxide.

The nail itself is also developing a discoloration. I actually had that nail removed about one year after surgery. Anyway I see the Podiatrist this week - hope he's familiar with RSD?

Thanx
Mike

BTW: In my 5-6 year history I've tried everything from 'SCS Trials' to Ketmaine (no relief).
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Old 07-23-2017, 06:59 PM #2
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Hello Mike: Welcome to NeuroTalk! I trust you will find the time you spend here to be of benefit. There are lots of very knowledge members here. (By the way, I'm also 69!)
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Old 07-24-2017, 04:08 PM #3
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Hi and welcome,

I'm sorry you've had to join but hope you find it a soft place to land for support and understanding.

There's little worse than hurting your affected limb, besides the pain there is the worry of setting things off and wondering when the heck it's going to calm down.

Please be sure all is well with that toe before attributing the symptoms to CRPS. Swelling and the resulting shiny skin could also have resulted from infection from bumping the toe and breaking the skin minutely. It's always good to be sure everything is ruled out and treated.

If it is the CRPS flaring there are medication options. Some doctors will give a short course of steroids and/or gabapentin to help the area settle. 500 mg daily of vitamin C isn't a bad idea either. Knocking down the additional free radicals from inflammation may help.

I hope your appointment goes well and you get relief soon,
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Old 07-25-2017, 12:00 AM #4
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Thanx Little Paw

As I mentioned, I'm firmly diagnosed, (going on 6 years now). But the toe is getting better, the discharge is gone. I've been a member of 'RSD' Facebook groups for some time now but I recently quit Facebook.

Thanx again
Mike
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Old 07-25-2017, 11:35 AM #5
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Hi and Welcome! So sorry you are injured and hope you don't have RSD. My rsd was confirmed by a neurologist and pain management doctor. Had shiny skin, swelling, discoloration, excessive hair and nail growth, limited range of motion and constant and extreme pain. It started when I broke my wrist and six years later I still have all the symptoms which have now spread to most of my body. I research rsd all the time and print out info for my doctors. I have also been with this amazing forum for about three years. The support I get here from others who understand my pain is priceless. I hope and pray you don't have rsd but if you do you are not alone here. This is a great place for compassion and support. Hugs to you my friend.
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Old 07-25-2017, 01:02 PM #6
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Hi RSD-ME

I do appreciate all the helpful comments. Let me repeat I definitely 'do' have RSD as I indicated in my first comment. I'd rather avoid going thru my history, (that's not necessary), as I'm totally familiar with the effects of living with this condition. As I said its 'well documented' so I'm beyond that and I'm not asking for help on whether I actually have it or not. I'm living with it, some days 'ok' somedays not good at all. 'RSD' can easily spread to other limbs (which is already happening). Whether its 'officially' in my right toe is a 'good bet' because that's the limb where the surgical injury occurred. However as I said the pain and discharge have diminished.

Thanx
Mike
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