Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-07-2017, 10:39 AM #1
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catra121 catra121 is offline
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catra121 catra121 is offline
Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default I qualified for the drug study!!

After two weeks of being high dosed on Vitamin D, I went in to get my levels rechecked last Tuesday and this morning I got the call that my levels were high enough to qualify for the drug study! I should be able to start either Wednesday or Friday (depending on how quickly she hears back from the study coordinator). Fingers crossed that this provides some much needed relief!

The drug is called neridronic acid and it's a biophosphate (I think there are several different ones out there being tested). It will be 4 infusions total over a 2 week period (each appointment lasts about 6 hours). Everyone gets the meds in this study...no placebos. My doctor said at my last appointment that of the 12 people who he'd had go through the study so far, 9 had gotten relief. Even if it's just a little...ANY relief would be a huge plus.

I'll try to keep everyone updated on how the study goes...and I'll have my mom take some pictures while I'm getting the treatment to document the whole process.
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BioBased (08-08-2017), RSD ME (08-08-2017), St George 2013 (08-08-2017)
 

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