FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
|
08-14-2017, 08:50 PM | #1 | |||
|
||||
Senior Member
|
Quote:
|
|||
Reply With Quote |
"Thanks for this!" says: |
08-17-2017, 02:28 PM | #2 | |||
|
||||
Member
|
Quote:
My trial ended Tuesday afternoon and we returned back home yesterday. I wish I could keep the device in for a little longer while they worked on getting approval from my insurance for the permanent device, but it was nice to be able to take a shower once we got back to the hotel for the evening which I could not do during the trial. All in all, the doctors and I were extremely pleased with the results of the trial during the past week even though I did have a few problems that were quickly taken care of. The only real complaint that I had was how temperamental the device was on how I was positioned. If I was lying down, or standing or sitting with my back slightly arched, I would get a little paresthesia. If I was a little hunched over or slouching at all, I would get no relief. I guess that means that I will have to watch how I sit or lie down from now on if I want good relief without the paresthesia going on, but of the many treatments I have tried so far, this is the only one that has given good results. Since I was getting good pain relief and can see me starting to get my life back, I can easily put that off to the side and not really complain about it at all. Since we were all so pleased with the results, they are trying to get insurance approval for the permanent device. If everything goes well, I should be getting that sometime mid to late September. My fingers are crossed that everything goes through without any problems.
__________________
. Alaina |
|||
Reply With Quote |
08-18-2017, 01:04 PM | #3 | |||
|
||||
Senior Member
|
Quote:
|
|||
Reply With Quote |
"Thanks for this!" says: |
08-19-2017, 01:03 PM | #4 | |||
|
||||
Member
|
With the leads being implanted there will be no chance of them accidentally being tugged by anything. They also assured me that because it is a permanent device, the leads are anchored and there is less chance of them moving around at all. Hopefully the permanent device works at least as well as the temporary one did with fewer complications. Not that I had all that many.
__________________
. Alaina |
|||
Reply With Quote |
08-19-2017, 09:23 PM | #5 | ||
|
|||
Magnate
|
Alaina,
Thankfully the rep was able to reprogram. I can understand movement may cause the leads which are not implanted to move causing various sensations. Even tho the device is permanent; if any similarity to an SCS, the leads can still move or migrate; just not as easily (Also, scar tissue that holds the leads in place can also sometimes cause a bit of movement. So either way; best to play it safe and take extra care. Again, thanks for the updates. Special thoughts coming your way..... Gerry |
||
Reply With Quote |
"Thanks for this!" says: | PurpleFoot721 (08-20-2017), RSD ME (08-20-2017) |
08-25-2017, 04:41 AM | #6 | |||
|
||||
Member
|
If the leads have less chance of moving around with permanent implantation and compared to a regular device, then that's progress.
I hope you can get the OK for a permanent device (or is that done already). Here in this country for any type of stimulation device, you first need to take the trial, and then pending on that and a few other things you get approval yay or nay.
__________________
All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
|||
Reply With Quote |
08-26-2017, 11:13 AM | #7 | ||
|
|||
Magnate
|
Quote:
That's pretty much the same here; I first had to get approved for the trial with the SCS by my PM and a psychologist. Then, as you mentioned; pending on that, etc., you may get approval. Gerry |
||
Reply With Quote |
"Thanks for this!" says: | PurpleFoot721 (08-26-2017), RSD ME (08-27-2017) |
10-06-2021, 01:22 PM | #8 | ||
|
|||
New Member
|
Reading stories of implants, ketamine and spinal fusion are shocking to me and crude with the patient suffering from invasive sometimes permanent treatment that is experimental. It's a freaking crime doctors are doing this to desperate and suffering people. I refused to do it. Most of the time it makes things worse. My shoulder surgeon was afraid to give me a cortisone injection worried it would bring CRPS to that area. It didn't. But what about a spinal fusion or implant surgery. Were they worried about that? No, didn’t even know it was a problem. Pitiful and scary. Crude at best. Wishing all a recovery with neridronate infusions. Bug your representatives for trials of Italian drug here. We can beat this nightmare. Love and hope to you all. S
|
||
Reply With Quote |
10-16-2021, 11:04 AM | #9 | |||
|
||||
Member
|
Quote:
Just FYI!
__________________
All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
nausea with trial stim? | SCS & Pain Pumps | |||
Happy Holidays- Good News/Bad News | Myasthenia Gravis | |||
Good News and not so good news. Update on me and mine. | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Article: good news for the newly diagnosed, fair news for the rest of us | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Good news/bad news kinda thing | Peripheral Neuropathy |