Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-25-2017, 04:56 AM #6
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Location: Belgium, Europe
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Location: Belgium, Europe
Posts: 832
15 yr Member
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I had a "cleanout" arthroscopy after my accident as well on the right side. I woke up with a leg that was black! Red/purple in bed, and black when I got out of bed. They put me into bed immediately. Doctor refused to visit. I heard the nurse shout at the doctor, because indeed, I had filled out pre-op records and it said "feet turn blue". I had it bad back then, but the surgery caused it to "hit" much harder all of a sudden, on both sides. A bit after that I could no longer walk 10 steps without devices. I had 8 months of PT, only to get worse.

Then after about 3 years I got diagnosed with CRPS, but by that time it was too late for my legs (disability). And to say this only started in 2 knees (dashboard injury, and I held back surgery on one knee).

Had all the specialists I went to, only seen this sooner.

In the end I went to my GP, out of sheer desperation, and he IMMEDIATELY sent me to a neurologist, who IMMEDIATELY noticed what was up (thankfully) - I had full blown osteoporosis at that time. But all the treatments were much too late for me, they still tried, though, for which I am eternally grateful! The meds did work on the osteoporosis which is one symptom of a complex disease, but not so much the RSD itself.

Quote:
Originally Posted by rigman06 View Post
Now I'm being told that I have RSD and there is a good likelyhood that this will be permant. Can someone PLEASE tell me what I am in for...I am in soooo much pain, my current Dr will not give me any pain meds and says that I need to start pain management. Can someone please help me.
Go to pain management! They not only take care of the pain but they are excellent doctors that are well-known with RSD.

I wish you lots of luck!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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ger715 (08-25-2017), PurpleFoot721 (08-25-2017), RSD ME (08-25-2017)
 

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mri, pain, rehab, relief, told


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