Hi all

I had my SGB last Tuesday followed by a four hour ketamine infusion.
I slept through the whole thing and had some pretty vivid hallucinations.
What is particularly strange is that I have experienced the same hallucinations each time I have been "under" the ketamine - a continuation if you will of the past "trip" or an extension of it- kind of odd

I started out on 40 mgs of oral ketamine a day post infusion and moved up to 60 mg.
I don't feel too badly from it - a little tired and spacey but able to function fully at home.

What I do feel is a tremendous reduction of my symptoms.My burning pain particularly has decreased significantly.I would say a good 65%- sometimes more !!!!!!!!
Whether this will continue post treatment remains to be seen but it feels so nice right now.
I remain very positive and hopeful that I will get at least a week or two from this after all is said and done - any more would be icing !! 2 weeks at 65% reduction compared to what I have been like lately would be great right now

I will keep you posted -


Much peace

GnP

GnP
Thanks for the update....Pain relief, how wonderful !!!! Hopefully it will last a long time
Jeanne

GNP I am so glad that your getting at least 65 % of a reduction of the pain!! Wait.. I said at least!! I mean.. dang Girl.... That is so darn freekin' "AWESOME"!! I am extreamly excited for you GNP!! I am very, very happy of the outcome of all this is having on you!! May I add, that your so brave to get this done!!! You have had some vivid dreams eh?? wow oh wowie, GNP!! Yes, please keep us posted!! And again.. "THAT IS SUCH AWESOME NEWS GNP" ! Love, Desi

Dear GnP,

What wonderful news, you have made my day. I hope your pain levels stay down for good. You have such a fantastic atitude. I am so very happy for you GnP. Much Love, Roz xxx

great great news GnP. you must be so happy.
when i was a child i underwent anesthesia every few months and i always had the same nightmare while under .... strange you said that about the Ketamine.
keep us posted on your progress. and all the best.
joan

GnP,
Congrats! I am very happy for you. way to go.
Hope

Dear GnP -

Love the idea if a continuation of your trip from the year before. Sounds like the interrupted delivery of a mesaage from you subconcious. Enjoy!

Mike

How wonderful that you are experiencing relief from the ketamine. I am so very happy for you. I have heard that it really helps burning pain. Are you getting it in an IV or an A Line ( run up through your arm to your neck)?
This is a different type of threatment I never heard of. I thought you had to go into the hospital as an in patient for a week - then have boosters for a day every other week or so. I believe that is how Dr. S. does it.
Good for you! It is unfortunate about the hallucinations but I believe there is a drug they can give you to prevent this. I have read about this in several places - just can't remember the name of it.
best wishes for continued pain free days.
Sydney

and now I want to cry like a baby

Yes today will be my first day without .
The last 3 to several days have been GREAT.
MY burning pain was down to almost nothing
I was more accustomed to the feeling of the ketamine so I was able to do more than just lie around and stare into space like the first week .
I also felt really good- no I mean really really good.I used my hands in ways I haven't used them in years!I cleaned out a garbage disposal
Now I know to many that does not sound very exciting - and on the excitement- o rama meter it probably wouldn't score very high - but when the thought of even putting your hands down there normally has me running in the other direction, this is huge!!!!!!!!
Two weeks ago it would not have been within my realty . Yesterday I said"Wait ,I can do that " and stuck my hand down and messed around in there to see what was stuck in the blades of the the disposal and I pulled the stuff out ." I was grossed out , stunned , and incredulous all at the same time.
My hand did not come out bright red and it did not hurt while I was doing it.
My hands as of right now do not feel fragile and tender on top of the burning and pain.
How long this will last I don't know but I am going to savor every minute of this.
I don't feel "cured" but I feel a whole lot better right now.

It is a little early in the new day to see how things will go.

I do have an appointment with my PM doc this week and I would indeed like to discuss some ways to incorporate ketamine into my lifestyle-and med protocol.
As it has a short half life and leaves the body so quickly maybe 10 or 20 mgs for breakfast may be low enough to just do something before I go anywhere
and maybe a goodnight dose at bedtime so I am not a danger to anyone .
I have no idea if he will be keen on these treatment options but you can never get a "Yes" if you don't ask.

Again,I am very psyched for the potential for this drug for all of us !!!

Even if I don't feel good for long ......I had yesterday (there is a cheezy song in there somewhere )

peace

GnP

GnP,
Girl, I am so darn happy for you!! wow.. this sounds amazing that this stuff is that good!! who knows?? chicken me, may want to try this stuff!! "Keep on keeping on Lady"!! Love and hugs ((GnP))) Love ya! Love, Desi