Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-11-2017, 11:32 AM #11
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Also...my current pain doctor has never seen me at my best. It doesn't matter if they see your worst, best, etc...they are supposed to treat your as you are. You will never be at pre-accident levels unless you achieve remission...but that doesn't mean you can't work (and I'm not saying you can do that now). A doctor's job is to evaluate your current situation and treat where you are NOW. It's not a comparison...you will always fall short of your former self and that is the truth....you need to accept that. But any good doctor can evaluate your current self. It's important when you see the doctors that you talk about NOW...not a year ago, two years ago, ten years ago...what are your symptoms right now, what are your limitations right now, etc. Again...I understand how hard that is...but it's the most important thing to focus on is right now. They'll ask for your history and you can go over everything in the past then...and then move on to NOW and where you want to be (what are your goals from treatment). Be realistic with your treatment goals and even break them down into smaller, attainable parts. This helps you work WITH the doctor to reach goals.

So sorry, really, for everything you are going through. I have been through it (am still going through it) and I know how hard it is. Always here if you need to talk...you can always message me too.
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Old 09-12-2017, 07:22 PM #12
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As Catra said, you can't expect to go back to before. Even if you get a remission there will likely be things that never go back to normal. But WC has to look at what your limitations are right now. If you have to keep your foot up for xyz hours per day, they need to have that in their report. If you can only shower 2x per week (me too!) they need to have that in their report. What is the maximum amount of time you can sit in a chair? (i.e. doing sedentary work. Do you need to nap during the day? How long?

You need to get all of this documented.

It may take time to get your lawyer familiar with your case. OR you need to find a different lawyer. Only you can make that decision.

Also you are entitled to a second opinion medically. If you are going to the first place WC sent you, you may want to change doctors. That's how I was able to find doctors that were on MY side and not on WC side.
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