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01-02-2018, 02:03 PM | #61 | |||
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Senior Member
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Saw my PVP today. He thinks the incision is infected...or at least the skin around it definitely is. He's not sure if the rash on my legs is related or not, but he gave me antibiotics and a prescription strength hydrocortisone cream. He seemed most concerned with the red bumps on my back around the incision because those are bigger and "angrier looking" than the bumps and welts on my legs. Can't tell if any of it is helping yet but am glad I went. Haven't heard back from my pain Dr yet.
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"Thanks for this!" says: | RSD ME (01-19-2018) |
01-02-2018, 06:46 PM | #62 | ||
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"Thanks for this!" says: | RSD ME (01-19-2018) |
01-03-2018, 01:27 PM | #63 | |||
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Senior Member
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I did have my implant at Rush. I am waiting to hear back from my rep too. I'm actually kind of surprised how little follow up I've had from everyone...but then again everything has been going really well for me so I guess it makes sense. I don't think I got a follow up call from my St. Judes rep after the permanent implant (I did get one from the Surgi Center)...I know I got a couple calls during the trial but not every day like she said it would be (but again...everything was going great so I guess it makes sense that I wouldn't be getting a ton of follow up).
The hydrocortisone doesn't seem to be helping much at all with the itching. I am at the point of almost scratching myself bloody...and you can imagine the RSD pain I am experiencing because of the itching...but if I don't scratch I am literally losing it. I finally managed to fall asleep last night and woke up less than an hour later scratching and the pain that resulted from that. I hope it's not a staph infection...that would really stink. They said everything looked good on the 22nd when I went in for my follow up...but all this redness and stuff started after that (after they took off the dressings and put new steri strips on). Hopefully I get an answer soon or the antibiotics that my PCP gave me take care of it. How are you doing? |
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"Thanks for this!" says: | RSD ME (01-19-2018) |
01-03-2018, 03:32 PM | #64 | ||
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I am itchy too - still have all my original dressings on so at least that prevents me from trying to scratch the wounds themselves. Two of my 3 leads were not giving any pain or sensation relief at their highest settings. I am going to Rush tomorrow (Thurs.) to meet with the St. Jude's rep to try to figure out what's going one. And now my remaining lead has completely shut down. So I am somewhat depressed. My equipment isn't working and consequently all of my pain has returned. I hurried to have the surgery before the end of the year b/c my out-of-pocket costs with insurance had been met. I am worried I will need to have this all re-done. I came down with a nasty cough after surgery and I am worried that my extreme coughing may have dislodged something. 2018 has to be better. |
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01-03-2018, 03:39 PM | #65 | ||
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I am worried about you with a possible infection. I really think some one who was involved in the procedure needs to respond to you. Keep pushing them. |
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01-03-2018, 06:21 PM | #66 | ||
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Junior Member
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Quote:
– Basil: This popular herb contains a substance called eugenol, which numbs the nerve endings that cause itching. Place a tablespoon of dried basil leaves in 16 ounces of boiling water, keeping the pan covered. Allow it to cool before applying to itchy skin. Reserve the rest in a mason jar to use later. – Thyme: Like basil and mint, thyme also has anti-inflammatory properties, and is also a numbing agent. Place a tablespoon of dried thyme leaves in a 16 ounces of boiling water. Allow it to cool before applying to itchy skin. Reserve the rest in a mason jar to use later. We apply these with a cotton ball. Natural Itch Relief - Farmers' Almanac I REALLY hope you find some relief soon ! |
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01-04-2018, 03:24 AM | #67 | |||
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Senior Member
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The pain clinic finally did follow up after the st judes rep talked to them. I had to email pictures and then one of the fellows called me back. He said it might be an allergic reaction to the tape but that it also could be an infection. They called in more antibiotics and want me to increase the dose from 2x per day for 7 days to 3x per day for 10 days. He said better safe than sorry so better to treat with antibiotics just to make sure. Said to take more pics and call back if it gets any worse. |
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"Thanks for this!" says: | RSD ME (01-19-2018) |
01-05-2018, 10:33 AM | #68 | |||
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Senior Member
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Well things seem to be getting better with the antibiotics. Other than flare up pain from all the scratching...the treatment is still working great for me. If I didn't have the DRG I would probably have been bed ridden with the pain from scratching. Instead my pain is a 6-7 right now...elevated but bearable.
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"Thanks for this!" says: | RSD ME (01-19-2018) |
01-05-2018, 12:13 PM | #69 | ||
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Magnate
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My incisions didn't get infected but did itch terribly and this really did help: Amazon.com: Anti-Chafing Sports Salve, all natural anti-fungal, best remedy for chafing, rash, and skin fungus: Health & Personal Care
BTW, I'm not sure you use them, but 4% Lidocaine Patches are available over the counter by Salonpas and Aspercreme for less than $2 a patch. Insurance companies seem to be regularly refusing even generic 5% patches and out of pocket from Costco they're $150 for a box of 30. |
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"Thanks for this!" says: | RSD ME (01-19-2018) |
01-05-2018, 03:38 PM | #70 | |||
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Senior Member
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The itchiness on my legs and those bumps and welts are still pretty bad though...so maybe that is just from dryness and is unrelated to what was happening on my back. I will look into that salve though for sure. Thanks. |
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"Thanks for this!" says: | RSD ME (01-19-2018) |
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