Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-31-2018, 07:12 AM #111
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I'm doing ok...surviving. the DRG is working great for my leg...arms are still not in great shape and I was really looking forward to my surgery scheduled for the 11th of June to get the DRG for my arms. Unfortunately...that was cancelled this week because my insurance company just changed their policy to code the DRG as investigational so all the people with blue cross who were scheduled to have the DRG implant (for any part of the body) had their surgery cancelled. My Dr is trying to set up a meeting with blue cross to get this changed, seems ridiculous if they have been covering them for years and now are like wait no that's investigational. So all of us are on a waitlist for the surgery now.
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Old 06-01-2018, 05:50 AM #112
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Originally Posted by catra121 View Post
I'm doing ok...surviving. the DRG is working great for my leg...arms are still not in great shape and I was really looking forward to my surgery scheduled for the 11th of June to get the DRG for my arms. Unfortunately...that was cancelled this week because my insurance company just changed their policy to code the DRG as investigational so all the people with blue cross who were scheduled to have the DRG implant (for any part of the body) had their surgery cancelled. My Dr is trying to set up a meeting with blue cross to get this changed, seems ridiculous if they have been covering them for years and now are like wait no that's investigational. So all of us are on a waitlist for the surgery now.
OMG that's dreadful. I am glad it is helping with the leg though! Let's keep our fingers crossed for the arms!

Thanks for your update!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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