Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-15-2017, 09:23 AM #31
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Quote:
Originally Posted by Becca71 View Post
This is so amazing! I can't imagine a 2.... I know the back pain is bad now, but like you said, it will heal. I bet trying not to twist and turn is hard though...
Yes...haha...life with a 3 year old and trying. It to bend and twist are not a good mix...lol. honestly my biggest struggles relate to sitting, laying down, and then getting OUT of those positions. Car rides are also horrible right now. I thought that by now I would be able to drive short distances...but that's still a ways away I think. I do feel better up and walking...but also have to be careful to just be up and walking and not trying to do anything else while I move about (it's really hard to turn off mom mode even when in pain).

The grabber though has been a real life saver. I still feel a little silly when I use it but it has really prevented me from doing anything too strenuous like bending and whatnot.
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Old 12-15-2017, 09:33 AM #32
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Didn't post an update yeaterday. Everything is still pretty much the same...leg is great but back sucks. Yesterday I managed just short of 5000 steps for the day and I'm pretty proud of that. My legs are slowly getting used to the extra work and I know it will be months before they can handle anything approaching normal all day walking but I like seeing the total number there. Nice bonus on the controller that it shows that.

I also found a way to sleep that doesn't totally kill me except when I try to get up...so I got a little more sleep last night. I've been taking one Norco and 3 Advil every 6 hours or so and that seems to be the best combo for me at the moment. I do not have enough Norco yo make it to next Friday's appointment so I am hoping the pain starts to lessen a bit over the weekend where the Advil will be ebough on its own.

I am feeling very tired today...maybe it's been all th4 walking and not the greatest sleeping. I'm going to try to take it a bit easier this morning...but I can already tell my back doesn't like the idea...haha...so we shall see what happens in a few hours.
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Old 12-15-2017, 08:23 PM #33
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Well...Im a big dope. Totally forgot to take ANY pain meds this afternoon. I kind of dozed off and then had a visitor who brought some freezer meals. And then it was 6pm and I was like why am I in so muuuucccchhh pain? Because I'm a dummy. Today was obviously very much a rest sort of day but I still walked almost 3000 steps today even with the resting. Best parts of my days are when I'm walking...but my body needs rest too so I'm trying to balance that.
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Old 12-16-2017, 01:41 PM #34
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Day 6...and there finally seems to be some improvement in this back pain...woo hoo! Still very sore and I'm remembering my pain meds today...but I have been able to sit reasonably comfortably in a chair today with just a dull ache.

So far in all 6 days my leg pain has not risen above a 2/10. That is just...incredible.
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Old 12-18-2017, 10:55 AM #35
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Ok...so here I am one week after implant and things are going well. Yesterday (day 7) was a bit of a slug day but also one of the worst in terms of me over doing it because my daughter and husband were home all day and I did a lot of getting down on the floor with her, making them food, getting up and down from sitting to get my daughter things (which is one of the hardest things on my back...changing positions), etc. Today she's back in daycare and I have already walked about 6000 steps and it's not even 10am. Walking feels GREAT and I am so excited about what this means for my future. Wish it wasn't cold outside but you can't have everything. I will rest a bit bow and then in a few hours walk around some more. So far all I've taken meds wise Today is 3 Advil and the antibiotic. Trying to save the Norco for those times when I really feel like I need it for the back (which was a few times yesterday especially after an incident with my daughter where i could not stop laughing...which is good for the soul but bot so much for my back right now...lol).
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Old 12-19-2017, 09:56 PM #36
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Yesterday I ended up with over 8000 steps for the day a d today I did just over 6500 but was also on my feet wrapping gifts at the dining room table so I feel like I did about the same amount on my feet. Legs are a little tired so I think this is the max I can do for now. Really proud of the progress I've made so far.

I'm currently only taking Advil during the day and one Norco at night. Pain is getting better in my back. Last 2 days I've been itchy so I hope that's a good sign that things are healing. Tomorrow is my last day of antibiotics...yay. No bad side effects this time from them but it's a different dose so maybe that's why.

My doctors appointment is friday...so we'll see what that is like. I really don't know what to expect from it.
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Old 12-20-2017, 11:03 AM #37
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Day 10...noticeable reduction in my back pain now. I can sit and it really doesn't hurt except when I move. Last night I was able to actually sleep on my side instead of just on my stomach which is more comfortable for me. I get a little twinge every now and then but night and day from what I was feeling even 2 days ago.

My legs are feeling a little sore so I am going to take it easier today and just keep to walking in the house and not go anywhere today.

Let me just say...sponge baths suck and dry shampoo is a miracle (doesn't really compare to actually washing your hair but SO easy and much better than nothing). I have another 4.5 weeks of sponge baths to look forward to...boooooo... Totally worth it though.
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Old 12-21-2017, 01:30 AM #38
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6 weeks from surgery before you can shower? That seems insane.
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Old 12-21-2017, 05:24 PM #39
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I could shower after 3 weeks but I can't shower because of the RSD pain...only take baths. And I can't take a bath for 6 weeks.
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Old 12-21-2017, 07:01 PM #40
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Catra,

Appreciate your detailed reports of your recovery and progress. Great to hear that you are in less pain.

When you finally get to take that first bath, it will be a treat!

To your continued recovery,

brightcloud
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