NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Asking for help (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/250137-help.html)

LIT LOVE 12-01-2017 07:16 PM

You know, you might need to have a talk with your husband about him helping more.

If you have a monitor with a camera you can see if she is sleeping soundly through the night and if moving to a small bed would effect anything? Or maybe drop the crib railing and give her a stool to step down?

Usually having access to a potty through the night or in the morning is needed if she isn't going to have a diaper or pull up, so you might consider sticking with one just through the night then.

I was relying on my "good" arm before my surgery and now I can't manage much with either arm. I know your legs are maybe worse than your upper body? But you do need to protect it as well, so if you're not ready yet to make changes, just try to be proactive when you do get sore.

If you're renting perhaps you could look into moving to a single story?

You maybe already on top of all these things but I suspect you just might have a tendency to suck it up too often when things could be made easier for you...

catra121 12-01-2017 07:34 PM

And yes...though more regular trips to the potty will be harder...it won't actually be bad once I get the DRG if the pain relief is like the trial. But diaper changes are a killer for my shoulder...so I'm very relieved that those will be a thing of the past. She's done great today. I put a gate up and locked us in the kitchen with a little potty (And lots of stuff to keep her entertained). 5 successful pees in the potty and no accidents at all. Daddy is taking over now and I am going to soak in a warm bath because I can barely move at this point. But so glad she was easy on me today for day 1 of potty training. Daddy is home for days 2 and 3 so those should be much easier on me. Thanks for all the tips and support. I appreciate all of it so much.

Becca71 12-04-2017 10:29 PM

I was so nervous moving #2 to a "big boy bed" and it ended up being for no reason at all. If she sleeps 10 - 12 hours already, and is dry all night, I don't think you have anything to worry about there. And it will actually make tucking in much easier. No lifting at all! At her age she's ready for the independence. I would just stay up in the vicinity until I knew she was asleep, then you don't have to worry about trips up and down stairs, since clearly once she's out, she's out for the night.
As for potty training, sounds like she's ready!

catra121 12-05-2017 04:40 PM

Thanks for the tips ladies! I will definitely consider all of that as we transition into the big girl bed and everything else.

Potty training went really well...3 days of no accidents and she would run to the potty on her own with no prompting. She's an awesome little girl and sometimes I feel like I have it very easy (despite my CRPS issues).

I want to transition her to a toddler bed...but just not right now. We own our home and I've been sleeping downstairs because it's easier to not have to make multiple trips up and down, and since I barely sleep it's easier to just be downstairs with the tv and not wake my husband up when I get up, and both our bathrooms are downstairs. During the DRG trial I was able to go up and down the stairs no problem really...so hopefully once the permanent one is in and I'm healed up from the surgery I can be upstairs and that will work out better and be a better time transition into a bed for my daughter.

I agree that my husband needs to help more...but at the same time I realize how hard all of this has been on him too and he just looks SO tired all the time that I try to let him sleep and rest as much as he can. It means I do more than I should...but it won't do either of us any good if he completely runs himself down.

And my left arm is essentially useless at this point. ANY reaching, lifting, etc and it feels like someone is trying to rip my arm off. Obviously this makes everything hard. I still try to use it as much as possible to avoid frozen shoulder and making things worse...so it's not immobilized in any way...it just hurts really bad. My right arm is the "best of the worst" and that ends up being prone to flare ups from overuse. But like everything else, I've learned ways to do things that make everything easier on me...it's just hard when my baseline is an 8...I'm always just one little thing away from a flare up.

Anyway...the great news is that I DID ask for help from my husband's family for the 3 weeks after my DRG implant and I was able to get all but 2 dates covered by them...so just a couple days for my mom and dad to help out and I feel very relieved to not have that stress right now. It's so hard to ask for help but I feel like a large burden has been lifted.

Thanks again everyone...I always appreciate being able to talk/think things through with you guys. :)


All times are GMT -5. The time now is 03:53 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.