Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 12-01-2017, 07:16 PM #21
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

You know, you might need to have a talk with your husband about him helping more.

If you have a monitor with a camera you can see if she is sleeping soundly through the night and if moving to a small bed would effect anything? Or maybe drop the crib railing and give her a stool to step down?

Usually having access to a potty through the night or in the morning is needed if she isn't going to have a diaper or pull up, so you might consider sticking with one just through the night then.

I was relying on my "good" arm before my surgery and now I can't manage much with either arm. I know your legs are maybe worse than your upper body? But you do need to protect it as well, so if you're not ready yet to make changes, just try to be proactive when you do get sore.

If you're renting perhaps you could look into moving to a single story?

You maybe already on top of all these things but I suspect you just might have a tendency to suck it up too often when things could be made easier for you...
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (12-01-2017)

advertisement
Old 12-01-2017, 07:34 PM #22
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

And yes...though more regular trips to the potty will be harder...it won't actually be bad once I get the DRG if the pain relief is like the trial. But diaper changes are a killer for my shoulder...so I'm very relieved that those will be a thing of the past. She's done great today. I put a gate up and locked us in the kitchen with a little potty (And lots of stuff to keep her entertained). 5 successful pees in the potty and no accidents at all. Daddy is taking over now and I am going to soak in a warm bath because I can barely move at this point. But so glad she was easy on me today for day 1 of potty training. Daddy is home for days 2 and 3 so those should be much easier on me. Thanks for all the tips and support. I appreciate all of it so much.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
LIT LOVE (12-01-2017), RSD ME (12-01-2017)
Old 12-04-2017, 10:29 PM #23
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

I was so nervous moving #2 to a "big boy bed" and it ended up being for no reason at all. If she sleeps 10 - 12 hours already, and is dry all night, I don't think you have anything to worry about there. And it will actually make tucking in much easier. No lifting at all! At her age she's ready for the independence. I would just stay up in the vicinity until I knew she was asleep, then you don't have to worry about trips up and down stairs, since clearly once she's out, she's out for the night.
As for potty training, sounds like she's ready!
Becca71 is offline   Reply With QuoteReply With Quote
Old 12-05-2017, 04:40 PM #24
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Thanks for the tips ladies! I will definitely consider all of that as we transition into the big girl bed and everything else.

Potty training went really well...3 days of no accidents and she would run to the potty on her own with no prompting. She's an awesome little girl and sometimes I feel like I have it very easy (despite my CRPS issues).

I want to transition her to a toddler bed...but just not right now. We own our home and I've been sleeping downstairs because it's easier to not have to make multiple trips up and down, and since I barely sleep it's easier to just be downstairs with the tv and not wake my husband up when I get up, and both our bathrooms are downstairs. During the DRG trial I was able to go up and down the stairs no problem really...so hopefully once the permanent one is in and I'm healed up from the surgery I can be upstairs and that will work out better and be a better time transition into a bed for my daughter.

I agree that my husband needs to help more...but at the same time I realize how hard all of this has been on him too and he just looks SO tired all the time that I try to let him sleep and rest as much as he can. It means I do more than I should...but it won't do either of us any good if he completely runs himself down.

And my left arm is essentially useless at this point. ANY reaching, lifting, etc and it feels like someone is trying to rip my arm off. Obviously this makes everything hard. I still try to use it as much as possible to avoid frozen shoulder and making things worse...so it's not immobilized in any way...it just hurts really bad. My right arm is the "best of the worst" and that ends up being prone to flare ups from overuse. But like everything else, I've learned ways to do things that make everything easier on me...it's just hard when my baseline is an 8...I'm always just one little thing away from a flare up.

Anyway...the great news is that I DID ask for help from my husband's family for the 3 weeks after my DRG implant and I was able to get all but 2 dates covered by them...so just a couple days for my mom and dad to help out and I feel very relieved to not have that stress right now. It's so hard to ask for help but I feel like a large burden has been lifted.

Thanks again everyone...I always appreciate being able to talk/think things through with you guys.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
LIT LOVE (12-05-2017)
Reply

Tags
family, feel, hate, pain, people

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 06:42 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.