Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-27-2017, 06:59 AM #1
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Well pain is out of this world doc call me last night and we are starting my Nerv blocks injection again Dam this monster since 2005 it has spread an went into my both legs I can not walk it was bad enough that I had no use of my arms will doc said well I think we are going to have a cake for you she was trying to make me feel better she said that it will be my 200 block in 37 years of I getting them. So I said wow😊 I what chocolate but that was in between tears I'm so tired of this sometimes just don't know how I keep going fighting this it so hard I just want it to STOP. Sorry I'm having a very bad day and I just can't cry ant more.
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Old 11-27-2017, 02:58 PM #2
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Wow. That sucks. And I didn't know that they would even DO that many blocks. Are they not willing/able to try thinks like Ketamine, or other infusions? Different pain med combinations? I'm sorry I'm sure you've tried so many things...
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Old 11-27-2017, 08:49 PM #3
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My WC will not cover K and I have ben. On soo many drugs it would take a year to name them all I'm the poster child for RSD treatment at this hospital I couldn't ask for better care I know all the gas passer Doctor by their first name and they know when I come to them that I have left it go to far and I I'm in big trouble,
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Old 11-28-2017, 08:44 PM #4
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I'm so sorry for all that you are going through. I totally get the feeling of just wanting it to stop. It's why I even considered doing the DRG when before I always knew an SCS would be an absolute LAST resort for me...but I reached that point and I'm thankful that it took so long because now the DRG is out and seems to have much better results than the traditional SCS. And in a few more years...who knows what advances they will make? I know they are testing new things all the time and hopefully you will find something that works for you. Hugs.
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