FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
12-06-2017, 06:18 AM | #1 | ||
|
|||
Member
|
The University of Liverpool's Pain Research Institute at the Institute for Translational Medicine were involved in running a significant clinical trial of low-dose, IV immunoglobulin for treating long-standing CRPS pain. They have just recently announced that the trial of the promising treatment has been a failure. The announcement can be found here:
Promising treatment for Complex Regional Pain Syndrome ineffective - News - University of Liverpool The announcement also contains a link to the full details of the published randomised clinical trial. |
||
Reply With Quote |
"Thanks for this!" says: | RSD ME (12-11-2017) |
12-09-2017, 09:32 AM | #2 | ||
|
|||
Member
|
I recently got high dose IVIg - 2g/kg for a total of 125g given at 25g a day over five infusions. This is a pretty high loading dose. I wasn't expecting any relief at all the first dose, especially from the crps, which was actually not the reason I was having it. Surprisingly, I had tremendous pain relief and reduction of edema in my lower right affected quadrant for a few weeks. I'm due to have another infusion at half that amount as soon as insurance gets straightened out.
Maybe they should try high dose in these studies. |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Clinical Trial Results Support Genervon's GM6as Promising ALS Treatment | ALS News & Research | |||
NurOwn Phase 2 Clinical Trial Results Promising, BrainStorm Cell Reports | ALS News & Research | |||
CLINICAL TRIAL: Study of Chronic Autonomic Nervous System Failure | Parkinson's Disease Clinical Trials | |||
GDNF clinical trial results | Parkinson's Disease |