Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-02-2018, 04:56 PM #1
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Default Trying to be strong

These last few years have been difficult to say the least. Physically...the pain...you guys know how draining that is. I feel like every part of this journey has been a fight. Work comp...constant battle. Long term disability...denied, appealed, won. Getting approval for the treatment I needed...denied, denied, get new insurance and approved. It's taken 2.5 years to get to this point and I've worked so hard and am emotionally just so drained from the constant battles to get what I need/am owed. And now I have yet another battle ahead as I have been released back to work and told no. It's discrimination. They know it...I know it...but it's up to me to fight it...again. At some point I feel like my tank is just going to come up empty, you know? I'm not there yet but...sigh...I'm just SO tired of fighting for what is right. It's worth it of course...but...yeah...just tired.
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Old 03-02-2018, 07:09 PM #2
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If you can find the strength, write a letter to the doctor who denied the treatment. There's a good chance he has no idea what CRPS even is.
Light him up and you will probably win the appeal.
I have to appeal every last anything.
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Old 03-02-2018, 07:20 PM #3
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I did eventually get the treatment...it just took time and a change in insurance. Everything just takes so much time and patience and I am looking forward to hopefully overcoming this last hurdle and then maybe I can just expend a normal amount of energy living my life...
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Old 03-03-2018, 01:15 AM #4
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Quote:
Originally Posted by catra121 View Post
I did eventually get the treatment...it just took time and a change in insurance. Everything just takes so much time and patience and I am looking forward to hopefully overcoming this last hurdle and then maybe I can just expend a normal amount of energy living my life...
Lawyer day and insurance company day seem like such a waste of spoons.
But what else can we do?
And who is going to help us?
Us. That's who.
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