Go Back   NeuroTalk Support Groups > >

Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Crps rsd X 22 yrs

Reply
 
Thread Tools Display Modes
Old 01-15-2018, 05:26 PM   #1
kirsti
Junior Member
 
Join Date: Dec 2011
Posts: 8
Default Crps rsd X 22 yrs

Any help from ultrasound guided injection of numbing agent and steroid? Anything long lasting? Thanks in advance for help and your experiences! My Dr wants to try this referring me to sports med dr. Curious if it helps with long term red/crps.
kirsti is offline   Reply With Quote
Old 01-17-2018, 04:18 PM   #2
Littlepaw
Senior Member
 
Littlepaw's Avatar
 
Join Date: Nov 2014
Posts: 1,536
Default

Hello and Welcome Kirsti

22 years! you are quite a warrior.

I have had ultrasound guided injections of steroid + lidocaine to my tibial and plantar nerves. They were done by a Physical Medicine and Rehabilitation doctor who is certified in peripheral nerve ultrasound.

Mine were done partly to address surgical scar tissue to try to make some room in there but also to calm the nerves down. I did find them helpful. I had them pretty early on but it gave me a break and let me rehab better. It took something of a series of them. I had at least three. You gotta watch for atrophy in the injection area due to steroid with repeats.

Having the ultrasound guidance makes the injection much safer and better targeted. Of course there are risks with anything but the fact that the doc and I could both see the nerve on the screen made me much more comfortable than if it had been done blind.

I wish the best with whatever you decide is best for you.

Sending healing thoughts and soft hugs,
__________________
Littlepaw

Shine Your Bright Light
Littlepaw is offline   Reply With Quote
"Thanks for this!" says:
BioBased (01-20-2018), birchlake (02-23-2018), ger715 (01-21-2018), kirsti (01-21-2018)
Old 01-21-2018, 02:47 PM   #3
CRPSbe
Member
 
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 753
Default

22 years is a lot. Sadly I can't answer your question.

I have RSD/CRPS myself now, this September 22 years also. I'm nearing my 23rd year this year. Sad to say.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With Quote
"Thanks for this!" says:
ger715 (01-21-2018)
Old 01-21-2018, 06:22 PM   #4
kirsti
Junior Member
 
Join Date: Dec 2011
Posts: 8
Default Thanks for your reply Little-paw

Quote:
Originally Posted by Littlepaw View Post
Hello and Welcome Kirsti

22 years! you are quite a warrior.

I have had ultrasound guided injections of steroid + lidocaine to my tibial and plantar nerves. They were done by a Physical Medicine and Rehabilitation doctor who is certified in peripheral nerve ultrasound.

Mine were done partly to address surgical scar tissue to try to make some room in there but also to calm the nerves down. I did find them helpful. I had them pretty early on but it gave me a break and let me rehab better. It took something of a series of them. I had at least three. You gotta watch for atrophy in the injection area due to steroid with repeats.

Having the ultrasound guidance makes the injection much safer and better targeted. Of course there are risks with anything but the fact that the doc and I could both see the nerve on the screen made me much more comfortable than if it had been done blind.

I wish the best with whatever you decide is best for you.

Sending healing thoughts and soft hugs,



I'm curious whether or not I have both the CRPS and the neuroma. After 22 years they say I have a different type of CRPS and that if they can get the neuroma under control I will be healed! But I didn't get much relief at all from the first injection.
Thanks again.
Be well!
Kirsti
kirsti is offline   Reply With Quote
"Thanks for this!" says:
ger715 (01-21-2018)
Old 01-22-2018, 05:54 AM   #5
RSD31
Junior Member
 
Join Date: Mar 2009
Posts: 93
Default

I'm going on 38 years of RSD an still today get injection they are the only thing that helps with me I have to have a couple of injection to get any lasting effect so hang in there best of luck.
RSD31 is offline   Reply With Quote
"Thanks for this!" says:
kirsti (01-28-2018)
Old 01-29-2018, 12:42 PM   #6
kirsti
Junior Member
 
Join Date: Dec 2011
Posts: 8
Default

Quote:
Originally Posted by CRPSbe View Post
22 years is a lot. Sadly I can't answer your question.

I have RSD/CRPS myself now, this September 22 years also. I'm nearing my 23rd year this year. Sad to say.
Thank you for posting!
kirsti is offline   Reply With Quote
Old 02-04-2018, 09:44 AM   #7
Nanc
Member
 
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 974
My Mood: Crps rsd X 22 yrs
Default

Quote:
Originally Posted by kirsti View Post
I'm curious whether or not I have both the CRPS and the neuroma. After 22 years they say I have a different type of CRPS and that if they can get the neuroma under control I will be healed! But I didn't get much relief at all from the first injection.
Thanks again.
Be well!
Kirsti
Hello! 27 years here and full-body. I didn’t think that an ortho would do such an injection...interesting. Are they talking about a nerve block or what? I have had various nerve blocks in the past, they helped more early on than they did many years into this. What do you mean by a “different type of CRPS”? Also, RSD/CRPS cannot be “healed” or cured, there is only remission
Nanc is offline   Reply With Quote
Old 02-13-2018, 12:27 PM   #8
kirsti
Junior Member
 
Join Date: Dec 2011
Posts: 8
Default

Quote:
Originally Posted by Nanc View Post
Hello! 27 years here and full-body. I didn’t think that an ortho would do such an injection...interesting. Are they talking about a nerve block or what? I have had various nerve blocks in the past, they helped more early on than they did many years into this. What do you mean by a “different type of CRPS”? Also, RSD/CRPS cannot be “healed” or cured, there is only remission
Thanks for your reply. Yeah-originally they said it was not from an injury but now it is? That's what they meant by different type. However I always mentioned it was after the brake rotor fell onto my foot. That is as far as I could tell what started the whole mess. And now I feel it has spread outward from the original area since the injection that I had. So that totally sucks. The injection was using an ultrasound to guide the sports medicine specialist to inject lidocaine and a steroid.

Wow-you must have a lot to deal with. Full body must be rough. Thanks for your kind reply!
kirsti is offline   Reply With Quote
"Thanks for this!" says:
Nanc (02-15-2018)
Reply

Tags
experiences, helps, referring, sports, term

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
CRPS right arm - Seaglass1972 Reflex Sympathetic Dystrophy (RSD and CRPS) 12 03-19-2016 09:11 PM
CRPS right arm Seaglass1972 New Member Introductions 3 03-17-2016 04:29 PM
Rsd/crps twocabinet New Member Introductions 3 12-15-2011 01:34 AM
Crps kristbjorg Reflex Sympathetic Dystrophy (RSD and CRPS) 1 10-30-2010 07:15 PM
Hi, I have CRPS/RSD gatorsmomma New Member Introductions 4 05-12-2010 09:16 PM


All times are GMT -5. The time now is 04:43 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy