Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-06-2018, 02:01 AM #1
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default Heart problems

So after following through with the cardiologist it seems likely that CRPS is causing my fast heart rate and as well as a weak heart. I'm picking up new Rx's tomorrow.

Has anyone had success with CRPS related fast heart rates being lowered with meds or any other treatment? Is there a way to determine this is CRPS related?

Thank you.
LL
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (02-07-2018)

advertisement
Old 02-06-2018, 08:52 AM #2
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by LIT LOVE View Post
So after following through with the cardiologist it seems likely that CRPS is causing my fast heart rate and as well as a weak heart. I'm picking up new Rx's tomorrow.

Has anyone had success with CRPS related fast heart rates being lowered with meds or any other treatment? Is there a way to determine this is CRPS related?

Thank you.
LL
So far thank God the CRPS hasn't done anything to my organs, that I'm aware of.

If the doctors say it is related, I'd trust them, also please take the meds you are being given.

My grandma had to take high blood pressure pills because she had swinging (up and down) blood pressure. She got her meds but then suddenly up and decided she didn't want to take them. She got a massive stroke that left her paralyzed on one side.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
LIT LOVE (02-06-2018), RSD ME (02-07-2018)
Old 02-06-2018, 12:47 PM #3
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

My blood pressure is in normal ranges, I just have a fast heart rate, but it's significant, with spikes as high as 170-180. It's not that I won't take the meds, but I'm just curious if they're likely to work in this scenario. The cardiologist thought that CRPS made sense to be the cause but he has no experience with it. I'm not sure what my CRPS doc will say, or if I might need to see a new doctor. I've been overwhelmed with doctors and tests the past 6 months.
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (02-07-2018)
Old 02-06-2018, 01:01 PM #4
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

CRPS can and does affect internal organs. I'm sorry this is happening to you. There's no reason, though, to suspect that normal treatment for heart problems wouldn't work, as far as I know. The best thing, IMO, would be for the cardiologist to consult with your CRPS doctor.
Becca71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
LIT LOVE (02-07-2018), RSD ME (02-07-2018)
Old 02-06-2018, 10:51 PM #5
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

My doctors have said my fast heart rate is due to the crps/pain. The only thing that has helped me in that regard is lowering the pain levels. The worse my pain...the higher the heart rate and it's not uncommon for my resting HR to be 110+ and even just a short walk to bring it to 150+ (like...just across the room type short walk). That said...my last Dr appointment it was at 96 when they checked it which is the lowest I've seen it in a long time and I attribute that to the pain relief I've been getting in my leg from the DRG. New doctors always freak out about my HR and it's been frustrating any time I've gone to the er for anything else because most of the time they completely ignore my other complaints and focus on the heart rate. Wish I had more suggestions for you...I am very worried about the long term effects of the HR issues especially when all my relatives on my dad's side have died of heart issues when they were still pretty young.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
LIT LOVE (02-07-2018), RSD ME (02-07-2018)
Old 02-07-2018, 03:04 AM #6
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

Catra, Yes, I was shocked what little activity is causing my heart to race. Even the difference between sitting and lying down is significant. I'm not sure how I ignored this? To do the echocardiogram I had to lie down and do deep breathing exercises which dropped it to 117 from around 140.
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (02-07-2018)
Old 02-07-2018, 11:33 PM #7
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

I don't know about my heart rate, but I know that when I first was diagnosed and had no effective pain meds my bp was super high for me, 145/90 range (I'm normally 100/70 or even lower). And that was all caused by the pain. I never paid attention to the heart rate.
Becca71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (02-20-2018)
Old 02-08-2018, 01:21 AM #8
booklover booklover is offline
Junior Member
 
Join Date: Jul 2013
Location: Australia
Posts: 61
10 yr Member
booklover booklover is offline
Junior Member
 
Join Date: Jul 2013
Location: Australia
Posts: 61
10 yr Member
Default

Quote:
Originally Posted by LIT LOVE View Post
So after following through with the cardiologist it seems likely that CRPS is causing my fast heart rate and as well as a weak heart. I'm picking up new Rx's tomorrow.

Has anyone had success with CRPS related fast heart rates being lowered with meds or any other treatment? Is there a way to determine this is CRPS related?

Thank you.
LL
Heart rate hasn't been a consistent issue for me but high blood pressure surges with pain has been a more serious issue. For about 10 yrs I've taken clonadine which helps regulate my blood pressure surges. I have been more focussed on measuring the long term blood pressure because my CRPS and Cardiac specialists said for me that was what increased my stroke, heart attack risk over time and put it in the unacceptable range.
booklover is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (02-11-2018), RSD ME (02-20-2018)
Old 02-11-2018, 11:32 PM #9
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
Default

Quote:
Originally Posted by booklover View Post
Heart rate hasn't been a consistent issue for me but high blood pressure surges with pain has been a more serious issue. For about 10 yrs I've taken clonadine which helps regulate my blood pressure surges. I have been more focussed on measuring the long term blood pressure because my CRPS and Cardiac specialists said for me that was what increased my stroke, heart attack risk over time and put it in the unacceptable range.

I have the same issue....My high blood pressure surges with pain; The doctor has added a medication, along with my regular blood pressure med, that affects the top # only since the bottom is almost always in line.
ger715 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (02-20-2018)
Reply

Tags
crps, fast, heart, lowered, related

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
MG and heart problems GI6607 Myasthenia Gravis 2 04-07-2014 12:49 AM
heart problems cyclecrash Traumatic Brain Injury and Post Concussion Syndrome 10 03-06-2013 05:38 PM
Heart Problems firegirl Reflex Sympathetic Dystrophy (RSD and CRPS) 9 09-21-2010 07:01 AM
RSD and Heart Problems Cake Reflex Sympathetic Dystrophy (RSD and CRPS) 8 07-09-2009 02:16 AM
does anybody else have heart valve problems?? gibbrn Thoracic Outlet Syndrome 5 11-13-2008 10:41 PM


All times are GMT -5. The time now is 08:19 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.