Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-10-2018, 08:59 AM #11
Rain shower Rain shower is offline
Member
 
Join Date: Oct 2015
Location: USA
Posts: 116
8 yr Member
Rain shower Rain shower is offline
Member
 
Join Date: Oct 2015
Location: USA
Posts: 116
8 yr Member
Default

Same here. I have had CRPS for years and had a work related accident couple years ago that exasperated the disease. First IME perfect. Nice guy performed the exam with the utmost professionalism. Second IME horrible. Report said I was faking it, could go back to work no restrictions, nothing but a muscle strain. I was actually traumatized, both physically and psychologically. He kept claiming no doctor patient relationship when I questioned him on all this behavior. Case manager really hyped him up. Wrote the book on crps, will really help you, bla, bla, bla...
This does not give them the excuse to abuse us. Never again! My MD insisted I report him. I have since read he got away with this for years.
Rain shower is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (03-10-2018), bunnehead (03-20-2018), FrankB (03-10-2018)

advertisement
Old 03-12-2018, 05:55 PM #12
gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
8 yr Member
gigicnm gigicnm is offline
Junior Member
 
Join Date: Sep 2014
Location: Massachusetts
Posts: 55
8 yr Member
Default

Quote:
Originally Posted by LIT LOVE View Post
If you have been approved for SSDI then Medicare must approve a set aside amount in order to close out the medical portion of your case. On the one hand this is ideal, but it sure seems like the best way to comply with all this requires is to use a service to manage the funds and all the requirements, so it's also complicated.

WC law varies from state to state so this does not always hold true. In MA your WC carrier owns your medical care for life so there is no way around their corrupt system.

I once had an IME (requested/paid by the insurance company) with a very well respected hand surgeon. His report agreed with everything my pain doc and hand surgeon said. Once the insurance company saw the report they made him amend it. The main body of the report stayed the same except and addendum that stated he received new information that led him to the conclusion that it was all in my head! I don't know how he can note the color change, etc in my arm, but then state I'm crazy. Apparently I am a magician that can make my arm change color, swell, etc. on demand.

The bottom line is that the WC system in this country is rigged towards the insurance company.
gigicnm is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (03-17-2018), bunnehead (03-20-2018), FrankB (03-13-2018)
Old 03-14-2018, 09:55 AM #13
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by FrankB View Post
It took me years to get to pain management. Godsend.
PM doctor was the first person to take me seriously.
I recently got a private, cash doctor, close enough to home that I can ride my scooter over there. Was there yesterday in the middle of this flare. I'm now 28 hours into it. It literally knocks me down.
What was I trying to say?
I hired my own psych too. Cash. Found her while researching ketamine infusions and paid for a round of that. I can't afford her either. WC denied her. They denied ketamine too. I need her. Maybe today I can mooch a ride to her office. She usually keeps hours on Saturday.
I need to prepare a cost estimate for future medical bills. I can barely stand up.
At times like these I thank my booty for generalized health care here in Belgium. Gosh you guys have it so hard, especially under this administration.

It is not clear to me what has already changed with Obamacare.

How are you guys experiencing that?
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bunnehead (03-20-2018)
Old 03-14-2018, 05:56 PM #14
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

"Obamacare" gets a bad rap from our right, but it has been invaluable helping many of our citizens, especially those that are disabled but not qualified for Medicare or insurance from a spouse, etc.

What we're discussing in this thread is medical coverage for injuries that occurred at work. The insurance companies are very aggressive denying coverage.
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (03-17-2018), catra121 (03-14-2018)
Old 03-15-2018, 02:36 AM #15
FrankB FrankB is offline
Junior Member
 
Join Date: Mar 2018
Location: SoCal
Posts: 18
5 yr Member
FrankB FrankB is offline
Junior Member
 
Join Date: Mar 2018
Location: SoCal
Posts: 18
5 yr Member
Default

Quote:
Originally Posted by LIT LOVE View Post
"Obamacare" gets a bad rap from our right, but it has been invaluable helping many of our citizens, especially those that are disabled but not qualified for Medicare or insurance from a spouse, etc.

What we're discussing in this thread is medical coverage for injuries that occurred at work. The insurance companies are very aggressive denying coverage.
I suspect a diagnosis of CRPS results in what they term a "high value claim". Our crowd is expensive because it isn't easy or simple to get better.
FrankB is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (03-17-2018), bunnehead (03-20-2018)
Old 03-15-2018, 11:37 AM #16
Becca71's Avatar
Becca71 Becca71 is offline
Member
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Becca71 Becca71 is offline
Member
Becca71's Avatar
 
Join Date: Mar 2016
Location: CA
Posts: 204
8 yr Member
Default

From what my lawyer has hinted CRPS must be a very high value claim. Once you have it you don't just get better. It progresses. It often renders you unable to work. You certainly need medical (expensive medical) care.

My AME recommended I ask my doc for a prescription for a scooter. I'm quite sure that will be denied. W/C won't even approve exercise equipment for me, not even cheap equipment. He also said ask for a CAT scan to verify that one fracture didn't heal so that podiatrist can try again to get the device that's supposed to help with bone healing.

Oh and I DO have arthritis in my big toe joint, but podiatrist said its cause by the trauma from my fall. Multiple cysts in the joint. But he can't do any of the typical treatments due to the CRPS.

I can't believe a doc could just change their report. That sounds like medical malpractice to me!
Becca71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (03-17-2018), bunnehead (03-20-2018)
Old 03-15-2018, 01:54 PM #17
FrankB FrankB is offline
Junior Member
 
Join Date: Mar 2018
Location: SoCal
Posts: 18
5 yr Member
FrankB FrankB is offline
Junior Member
 
Join Date: Mar 2018
Location: SoCal
Posts: 18
5 yr Member
Default

Quote:
Originally Posted by Becca71 View Post
From what my lawyer has hinted CRPS must be a very high value claim. Once you have it you don't just get better. It progresses. It often renders you unable to work. You certainly need medical (expensive medical) care.

My AME recommended I ask my doc for a prescription for a scooter. I'm quite sure that will be denied. W/C won't even approve exercise equipment for me, not even cheap equipment. He also said ask for a CAT scan to verify that one fracture didn't heal so that podiatrist can try again to get the device that's supposed to help with bone healing.

Oh and I DO have arthritis in my big toe joint, but podiatrist said its cause by the trauma from my fall. Multiple cysts in the joint. But he can't do any of the typical treatments due to the CRPS.

I can't believe a doc could just change their report. That sounds like medical malpractice to me!
I bought my own scooter back when I had money. It's a game changer.
You can get them used for about one third of new cost.
Of course, work comp denied that request. Their reasoning was hilarious: if a person can stand up using a cane they do not need a power chair or scooter.
FrankB is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (03-17-2018), bunnehead (03-20-2018), catra121 (03-15-2018)
Old 03-15-2018, 03:29 PM #18
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

You can get free medical equipment loans from local organizations sometimes. If you call your local Red Cross they might be able to direct you.
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BioBased (03-17-2018), catra121 (03-15-2018)
Old 03-17-2018, 10:42 AM #19
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

Quote:
Originally Posted by FrankB View Post
It took me years to get to pain management. Godsend.
PM doctor was the first person to take me seriously.
I recently got a private, cash doctor, close enough to home that I can ride my scooter over there. Was there yesterday in the middle of this flare. I'm now 28 hours into it. It literally knocks me down.
What was I trying to say?
I hired my own psych too. Cash. Found her while researching ketamine infusions and paid for a round of that. I can't afford her either. WC denied her. They denied ketamine too. I need her. Maybe today I can mooch a ride to her office. She usually keeps hours on Saturday.
I need to prepare a cost estimate for future medical bills. I can barely stand up.
If you were fine, you would not be begging for help or paying for it out of pocket. It’s a red flag. You would think they would get this.
BioBased is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bunnehead (03-20-2018), FrankB (03-17-2018)
Old 03-17-2018, 10:58 AM #20
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
Default

Quote:
Originally Posted by gigicnm View Post
WC law varies from state to state so this does not always hold true. In MA your WC carrier owns your medical care for life so there is no way around their corrupt system.

I once had an IME (requested/paid by the insurance company) with a very well respected hand surgeon. His report agreed with everything my pain doc and hand surgeon said. Once the insurance company saw the report they made him amend it. The main body of the report stayed the same except and addendum that stated he received new information that led him to the conclusion that it was all in my head! I don't know how he can note the color change, etc in my arm, but then state I'm crazy. Apparently I am a magician that can make my arm change color, swell, etc. on demand.

The bottom line is that the WC system in this country is rigged towards the insurance company.
You said it! It is so bad doctors do not want to be involved in WC. In desperation I returned to a doctor I had seen a few times long before CRPS, he’s the one who sent me to the doctor, who diagnosed me with CRPS.

Since he knew me prior to and during,had all the records, old and new xrays, and both my feet/ ankles were flaring- red\ swollen and my rashes were scary he was able to see for himself that the IME was exactly the opposite of how I presented. He even spent time looking at my album of photos- hopefully all will be documented in his report. He refuted that I could walk on my toes and that I did not have an antalgic gait. When I told him that I was criticized by a WC doctor for switching hands when I used the cane, he said it was absurd. My hands are bothering me, too.

And he said we crpsers battle doctors who “don’t believe in CRPS, doctors who don’t think it spreads and doctors who think it goes away.”

He listed the differing temps of my feet. He said that I was too disabled to any kind of job and hugged me-I burst out crying.

But I am still incredibly angry, not just for me, but for everyone who gets treated so shabbily, when they really are in no position to self-advocate.
BioBased is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bunnehead (03-20-2018), catra121 (03-18-2018), FrankB (03-17-2018)
Reply

Tags
arthritis, bunion, doctor, pain, person

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
worker's comp ffmedic112 Traumatic Brain Injury and Post Concussion Syndrome 12 07-28-2015 07:39 PM
? about worker's comp lyndianne Layoffs, Unemployment and Worker's Compensation 4 05-08-2015 09:53 AM
NYS worker's comp and SS disability??? help Sonny1 Layoffs, Unemployment and Worker's Compensation 11 03-25-2011 07:34 PM
OT - on Worker's Comp HopeLivesHere Reflex Sympathetic Dystrophy (RSD and CRPS) 2 09-30-2006 05:47 PM
OT Worker's Comp HopeLivesHere Thoracic Outlet Syndrome 4 09-29-2006 12:19 PM


All times are GMT -5. The time now is 02:19 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.