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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Anger at Worker's Comp doctors

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Old 03-10-2018, 07:59 AM   #11
Rain shower
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Same here. I have had CRPS for years and had a work related accident couple years ago that exasperated the disease. First IME perfect. Nice guy performed the exam with the utmost professionalism. Second IME horrible. Report said I was faking it, could go back to work no restrictions, nothing but a muscle strain. I was actually traumatized, both physically and psychologically. He kept claiming no doctor patient relationship when I questioned him on all this behavior. Case manager really hyped him up. Wrote the book on crps, will really help you, bla, bla, bla...
This does not give them the excuse to abuse us. Never again! My MD insisted I report him. I have since read he got away with this for years.
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Old 03-12-2018, 05:55 PM   #12
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Originally Posted by LIT LOVE View Post
If you have been approved for SSDI then Medicare must approve a set aside amount in order to close out the medical portion of your case. On the one hand this is ideal, but it sure seems like the best way to comply with all this requires is to use a service to manage the funds and all the requirements, so it's also complicated.

WC law varies from state to state so this does not always hold true. In MA your WC carrier owns your medical care for life so there is no way around their corrupt system.

I once had an IME (requested/paid by the insurance company) with a very well respected hand surgeon. His report agreed with everything my pain doc and hand surgeon said. Once the insurance company saw the report they made him amend it. The main body of the report stayed the same except and addendum that stated he received new information that led him to the conclusion that it was all in my head! I don't know how he can note the color change, etc in my arm, but then state I'm crazy. Apparently I am a magician that can make my arm change color, swell, etc. on demand.

The bottom line is that the WC system in this country is rigged towards the insurance company.
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Old 03-14-2018, 09:55 AM   #13
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Originally Posted by FrankB View Post
It took me years to get to pain management. Godsend.
PM doctor was the first person to take me seriously.
I recently got a private, cash doctor, close enough to home that I can ride my scooter over there. Was there yesterday in the middle of this flare. I'm now 28 hours into it. It literally knocks me down.
What was I trying to say?
I hired my own psych too. Cash. Found her while researching ketamine infusions and paid for a round of that. I can't afford her either. WC denied her. They denied ketamine too. I need her. Maybe today I can mooch a ride to her office. She usually keeps hours on Saturday.
I need to prepare a cost estimate for future medical bills. I can barely stand up.
At times like these I thank my booty for generalized health care here in Belgium. Gosh you guys have it so hard, especially under this administration.

It is not clear to me what has already changed with Obamacare.

How are you guys experiencing that?
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 03-14-2018, 05:56 PM   #14
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"Obamacare" gets a bad rap from our right, but it has been invaluable helping many of our citizens, especially those that are disabled but not qualified for Medicare or insurance from a spouse, etc.

What we're discussing in this thread is medical coverage for injuries that occurred at work. The insurance companies are very aggressive denying coverage.
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Old 03-15-2018, 02:36 AM   #15
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"Obamacare" gets a bad rap from our right, but it has been invaluable helping many of our citizens, especially those that are disabled but not qualified for Medicare or insurance from a spouse, etc.

What we're discussing in this thread is medical coverage for injuries that occurred at work. The insurance companies are very aggressive denying coverage.
I suspect a diagnosis of CRPS results in what they term a "high value claim". Our crowd is expensive because it isn't easy or simple to get better.
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Old 03-15-2018, 11:37 AM   #16
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From what my lawyer has hinted CRPS must be a very high value claim. Once you have it you don't just get better. It progresses. It often renders you unable to work. You certainly need medical (expensive medical) care.

My AME recommended I ask my doc for a prescription for a scooter. I'm quite sure that will be denied. W/C won't even approve exercise equipment for me, not even cheap equipment. He also said ask for a CAT scan to verify that one fracture didn't heal so that podiatrist can try again to get the device that's supposed to help with bone healing.

Oh and I DO have arthritis in my big toe joint, but podiatrist said its cause by the trauma from my fall. Multiple cysts in the joint. But he can't do any of the typical treatments due to the CRPS.

I can't believe a doc could just change their report. That sounds like medical malpractice to me!
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Old 03-15-2018, 01:54 PM   #17
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From what my lawyer has hinted CRPS must be a very high value claim. Once you have it you don't just get better. It progresses. It often renders you unable to work. You certainly need medical (expensive medical) care.

My AME recommended I ask my doc for a prescription for a scooter. I'm quite sure that will be denied. W/C won't even approve exercise equipment for me, not even cheap equipment. He also said ask for a CAT scan to verify that one fracture didn't heal so that podiatrist can try again to get the device that's supposed to help with bone healing.

Oh and I DO have arthritis in my big toe joint, but podiatrist said its cause by the trauma from my fall. Multiple cysts in the joint. But he can't do any of the typical treatments due to the CRPS.

I can't believe a doc could just change their report. That sounds like medical malpractice to me!
I bought my own scooter back when I had money. It's a game changer.
You can get them used for about one third of new cost.
Of course, work comp denied that request. Their reasoning was hilarious: if a person can stand up using a cane they do not need a power chair or scooter.
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Old 03-15-2018, 03:29 PM   #18
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You can get free medical equipment loans from local organizations sometimes. If you call your local Red Cross they might be able to direct you.
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Old 03-17-2018, 10:42 AM   #19
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Originally Posted by FrankB View Post
It took me years to get to pain management. Godsend.
PM doctor was the first person to take me seriously.
I recently got a private, cash doctor, close enough to home that I can ride my scooter over there. Was there yesterday in the middle of this flare. I'm now 28 hours into it. It literally knocks me down.
What was I trying to say?
I hired my own psych too. Cash. Found her while researching ketamine infusions and paid for a round of that. I can't afford her either. WC denied her. They denied ketamine too. I need her. Maybe today I can mooch a ride to her office. She usually keeps hours on Saturday.
I need to prepare a cost estimate for future medical bills. I can barely stand up.
If you were fine, you would not be begging for help or paying for it out of pocket. Its a red flag. You would think they would get this.
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Old 03-17-2018, 10:58 AM   #20
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Originally Posted by gigicnm View Post
WC law varies from state to state so this does not always hold true. In MA your WC carrier owns your medical care for life so there is no way around their corrupt system.

I once had an IME (requested/paid by the insurance company) with a very well respected hand surgeon. His report agreed with everything my pain doc and hand surgeon said. Once the insurance company saw the report they made him amend it. The main body of the report stayed the same except and addendum that stated he received new information that led him to the conclusion that it was all in my head! I don't know how he can note the color change, etc in my arm, but then state I'm crazy. Apparently I am a magician that can make my arm change color, swell, etc. on demand.

The bottom line is that the WC system in this country is rigged towards the insurance company.
You said it! It is so bad doctors do not want to be involved in WC. In desperation I returned to a doctor I had seen a few times long before CRPS, hes the one who sent me to the doctor, who diagnosed me with CRPS.

Since he knew me prior to and during,had all the records, old and new xrays, and both my feet/ ankles were flaring- red\ swollen and my rashes were scary he was able to see for himself that the IME was exactly the opposite of how I presented. He even spent time looking at my album of photos- hopefully all will be documented in his report. He refuted that I could walk on my toes and that I did not have an antalgic gait. When I told him that I was criticized by a WC doctor for switching hands when I used the cane, he said it was absurd. My hands are bothering me, too.

And he said we crpsers battle doctors who dont believe in CRPS, doctors who dont think it spreads and doctors who think it goes away.

He listed the differing temps of my feet. He said that I was too disabled to any kind of job and hugged me-I burst out crying.

But I am still incredibly angry, not just for me, but for everyone who gets treated so shabbily, when they really are in no position to self-advocate.
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