Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-12-2018, 05:55 PM #1
gigicnm gigicnm is offline
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Originally Posted by LIT LOVE View Post
If you have been approved for SSDI then Medicare must approve a set aside amount in order to close out the medical portion of your case. On the one hand this is ideal, but it sure seems like the best way to comply with all this requires is to use a service to manage the funds and all the requirements, so it's also complicated.

WC law varies from state to state so this does not always hold true. In MA your WC carrier owns your medical care for life so there is no way around their corrupt system.

I once had an IME (requested/paid by the insurance company) with a very well respected hand surgeon. His report agreed with everything my pain doc and hand surgeon said. Once the insurance company saw the report they made him amend it. The main body of the report stayed the same except and addendum that stated he received new information that led him to the conclusion that it was all in my head! I don't know how he can note the color change, etc in my arm, but then state I'm crazy. Apparently I am a magician that can make my arm change color, swell, etc. on demand.

The bottom line is that the WC system in this country is rigged towards the insurance company.
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Old 03-17-2018, 10:58 AM #2
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Originally Posted by gigicnm View Post
WC law varies from state to state so this does not always hold true. In MA your WC carrier owns your medical care for life so there is no way around their corrupt system.

I once had an IME (requested/paid by the insurance company) with a very well respected hand surgeon. His report agreed with everything my pain doc and hand surgeon said. Once the insurance company saw the report they made him amend it. The main body of the report stayed the same except and addendum that stated he received new information that led him to the conclusion that it was all in my head! I don't know how he can note the color change, etc in my arm, but then state I'm crazy. Apparently I am a magician that can make my arm change color, swell, etc. on demand.

The bottom line is that the WC system in this country is rigged towards the insurance company.
You said it! It is so bad doctors do not want to be involved in WC. In desperation I returned to a doctor I had seen a few times long before CRPS, he’s the one who sent me to the doctor, who diagnosed me with CRPS.

Since he knew me prior to and during,had all the records, old and new xrays, and both my feet/ ankles were flaring- red\ swollen and my rashes were scary he was able to see for himself that the IME was exactly the opposite of how I presented. He even spent time looking at my album of photos- hopefully all will be documented in his report. He refuted that I could walk on my toes and that I did not have an antalgic gait. When I told him that I was criticized by a WC doctor for switching hands when I used the cane, he said it was absurd. My hands are bothering me, too.

And he said we crpsers battle doctors who “don’t believe in CRPS, doctors who don’t think it spreads and doctors who think it goes away.”

He listed the differing temps of my feet. He said that I was too disabled to any kind of job and hugged me-I burst out crying.

But I am still incredibly angry, not just for me, but for everyone who gets treated so shabbily, when they really are in no position to self-advocate.
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Old 03-18-2018, 09:52 PM #3
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I just saw my report from the AME (who is much better than the ones you guys see). End result he says I am now permanent and stationary and that medically I can't work. 30% disabled? I know my foot was 3 degrees lower temp than other foot. And leg is 1.5 cm smaller around and that's AFTER all the PT and rehab work. He noted the gait issue for me as well, and noted that the back pain and hip pain are considered 100% part of the work injury.
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Old 03-19-2018, 02:37 AM #4
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I just saw my report from the AME (who is much better than the ones you guys see). End result he says I am now permanent and stationary and that medically I can't work. 30% disabled? I know my foot was 3 degrees lower temp than other foot. And leg is 1.5 cm smaller around and that's AFTER all the PT and rehab work. He noted the gait issue for me as well, and noted that the back pain and hip pain are considered 100% part of the work injury.
Oh my goodness, you saw someone who actually measured differences. This doctor deserves a medal for his veracity. I am glad that you had a “genuine” exam with valid findings.
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