Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-09-2018, 12:23 PM #1
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Default Anger at Worker's Comp doctors

It is bad enough that a person is in so much pain that person can no longer fully function, but it is particularly egregious that a doctor, who may not be treating them would out and out lie.

For two years I was repeatedly told that some of my pain was caused by arthritis that was supposedly clearly visible on the X-rays. I thought it was weird, because no other doctor mentioned it, but anything was possible. This doctor even compared how much I had to his.

Today I reviewed all my old xrays today and there is not one report that mentions arthritis. The only time "arthritis" is written is in the 2015 xray request to determine if I had it.

I also noted something about a bunion I have on my worst foot. Did anyone else experience dramatic worsening of their bunion after CRPS?

Forgive me for the abruptness of this posting, I have been like Mt.Vesuvius lately.
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Old 03-09-2018, 02:54 PM #2
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Update, I have new xrays that show patchy demineralization (CRPS) is in both feet and ankles and it is progressing. Oh yes, no arthritis, none.
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Old 03-09-2018, 04:17 PM #3
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I hear you. The QME I saw outright admitted he was being pressured to put me P&S and said he wouldn't, and said he wanted to send me to a top specialist. The report came back P&S and I no longer have CRPS apparently after 15 years. The system is rigged.
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Old 03-09-2018, 05:01 PM #4
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I agree. My AME is clearly trying to protect the insurance company in his report.
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Old 03-09-2018, 05:33 PM #5
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Quote:
Originally Posted by LIT LOVE View Post
I hear you. The QME I saw outright admitted he was being pressured to put me P&S and said he wouldn't, and said he wanted to send me to a top specialist. The report came back P&S and I no longer have CRPS apparently after 15 years. The system is rigged.
OMG is it ever! You must have gone mad. I know I have. CRPS rarely goes away after it is chronic. How the F do they get away with this?

My IME basically stated that I am super duper fine, I can work full time with a few restrictions, restrictions which are absurd if I am so fine.

I also would not need any further treatment, because my CRPS was at an end and was stable. Which is it? At an end or stable? It cannot be both.

Everyone says open medical is a wonderful thing, but I am beginning to think it is not a great idea to essentially have an insurance company decide to not treat you. Who will fight for you? Doctors do not have the time. OMG I feel royally f'd over.
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Old 03-09-2018, 05:35 PM #6
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Quote:
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I agree. My AME is clearly trying to protect the insurance company in his report.
I think the IME doctors swear an oath to protect the insurance companies.
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Old 03-09-2018, 06:00 PM #7
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Ugh...I hear you and I am sorry you have to deal with it.

At my one IME...the doctor said he was seriously concerned about my health...thought I should be hospitalised...had me wait while he called the lawyers to tell them I needed to be in the hospital...then came back and said I could go home. Report cane back stating I was basically fine...no mention of the hospitalization he thought I needed or whatever but lots of misleading statements that implied I was exaggerating my pain without stating it outright.

Saw that same IME doctor about 3 or 4 years later and he repeatedly told me that he remembered me and that he had called the lawyers and did I ever get to the hospital? Ummm...????? Dude.. I read your report. I can't say if you did or didn't call any lawyers about the hospitalization you thought I needed...I know MY lawyer didn't get a call and I sure as heck know it wasn't in your report. You've sold your soul to the insurance companies that pay your bills and I sure as heck don't trust you. Not that I said any of that of course but...really??

So...know you are not alone...though I know that is little comfort.
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Old 03-09-2018, 06:46 PM #8
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If you have been approved for SSDI then Medicare must approve a set aside amount in order to close out the medical portion of your case. On the one hand this is ideal, but it sure seems like the best way to comply with all this requires is to use a service to manage the funds and all the requirements, so it's also complicated.
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Old 03-09-2018, 09:33 PM #9
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Quote:
Originally Posted by LIT LOVE View Post
If you have been approved for SSDI then Medicare must approve a set aside amount in order to close out the medical portion of your case. On the one hand this is ideal, but it sure seems like the best way to comply with all this requires is to use a service to manage the funds and all the requirements, so it's also complicated.
My lawyer said I am getting open medical, nothing else was offered. It could be, because I am not eligible for SS disability.
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Old 03-10-2018, 07:30 AM #10
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It took me years to get to pain management. Godsend.
PM doctor was the first person to take me seriously.
I recently got a private, cash doctor, close enough to home that I can ride my scooter over there. Was there yesterday in the middle of this flare. I'm now 28 hours into it. It literally knocks me down.
What was I trying to say?
I hired my own psych too. Cash. Found her while researching ketamine infusions and paid for a round of that. I can't afford her either. WC denied her. They denied ketamine too. I need her. Maybe today I can mooch a ride to her office. She usually keeps hours on Saturday.
I need to prepare a cost estimate for future medical bills. I can barely stand up.
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